Faces of SCD Storytelling Program

Across countries, ethnicities and backgrounds, sickle cell disease touches lives in many forms—like sickle cell SS or SC—and with each one comes a story worth telling. Here, warriors of all ages, along with the health professionals and caregivers who stand beside them, share their voices and experiences, because every story matters.

We invite you to explore these stories or use the filter to find ones that speak to you.

Have a story of your own? We’d be honored to share it with our community. Click below to tell us about your journey.

Going Beyond Storytelling

After years of collecting stories from the SCD community, we’ve seen how each one carries power. Patients and caregivers share perspectives that are deeply personal and uniquely their own—and they deserve to be heard by the decision-makers shaping the future of sickle cell care. By lifting up these voices, we aim to highlight what the community truly needs and believes.

Warriors with Wings

Sick Cells has been honored to meet many brave, strong and resilient individuals over the years. A set of warrior wings on a profile signifies that this community member has passed away since our interview, but their legacy lives on through their story.

Sickle Cell Community

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