The Sick Cells Blog

Welcome to the Sick Cells blog! This is our online forum for discussing and sharing key information
about sickle cell disease and community activities.

Through this forum, you’ll hear from Sick Cells’ staff, board members and external partners,
and of course SCD community members.

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Lessons From the Past: COVID-19 & the 1918 Flu

Science often looks to the future: finding the next cure, creating the next vaccine, and predicting the next outbreak. However, looking back in history can sometimes be just as useful. In this blog, we’ll explore the similarities and differences between the 1918 Flu and COVID-19. 

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It’s Your Health Journey: Self-Advocacy in the ER

Sick Cells spoke with Jemela Williams, a sickle cell warrior, about the importance of self-advocacy and how she helps herself and fellow community members advocate for themselves in tough situations. 

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Becoming a Hero: Diversifying Blood Donations

Alexis Lott is a creative, sickle cell warrior, and staunch advocate for blood donation. She runs her own business as a marketing consultant and women’s minister. Sick Cells chatted with Alexis to learn more about why she is so passionate about blood donation, especially among people of color, and how she gets the word out about her own sickle cell advocacy.

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Vacunándose Para Proteger a Sus Seres Queridos

Sick Cells se sentó con Adrienne Shapiro, la quinta generación de madres en su familia que ha tenido un niño con la enfermedad de células falciformes (ECF), para discutir la importancia de vacunarse contra el COVID-19.

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Una Luchadora de Principio a Fin: La Vida Durante una Pandemia

Sick Cells habló con Whitney Carter, una luchadora de la ECF, sobre su trayectoria de salud mental a lo largo de la pandemia. Los efectos de la pandemia del COVID-19 se han sentido en todos lados. Ha cambiado la manera en que los luchadores de la enfermedad de células falciformes (ECF) pueden obtener cuidados de salud en los sitios clínicos, pero también ha traído oportunidades para la comunidad de la ECF.

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Centering the Patient Voice: A New Type of Advocacy for SCD

Sick Cells caught up in the new year with two Sick Cells Ambassadors to reflect on their experience giving public comments at a 2021 Wisconsin Drug Utilization Review board meeting.

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A Warrior Through and Through: Life During a Pandemic

Sick Cells spoke with Whitney Carter, a SCD Warrior, about her mental health journey over the course of the pandemic. The effects of the COVID-19 pandemic have been felt everywhere. It has changed the way sickle cell disease Warriors are able to get care in the clinical setting, but it has also brought opportunities to the SCD community.

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Vax It Up To Protect Your Loved Ones

Sick Cells sat down with Adrienne Shapiro, the fifth generation of mothers in her family to have a child with sickle cell disease, to discuss the importance of getting the COVID-19 vaccine.

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Vivir mi Vida (English Version)

The goal of the Hispanic Outreach Promoting Equity (HOPE) Project is to understand how race and ethnicity have impacted the experiences of Hispanic individuals with sickle cell disease (SCD). Sick Cells sat down with Nilda Navedo, a sickle cell warrior, to hear her story.

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Vivir mi Vida

El objetivo del proyecto Hispanic Outreach Promoting Equity (HOPE) es entender cómo la raza y la etnicidad han impactado las experiencias de individuos Hispanos con la enfermedad de células falciformes. Sick Cells se sentó con Nilda Navedo, una luchadora de anemia falciforme, para escuchar su historia. 

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4 Things To Know About The Delta Variant

The news has been talking a lot about the Delta Variant of COVID-19, but what is it exactly? There’s a lot of information out there about the Delta variant, but here are some fast facts to know.

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Un Cuento de Dos Luchadores: La Anemia Falciforme y las Vacunas de COVID-19

Desde que la vacuna de COVID-19 fue aprobada para los luchadores de anemia falciforme, han habido muchas preguntas sobre la vacuna. Sick Cells se sentó virtualmente con dos luchadores, quienes recibieron ambas dosis de la vacuna, para hablar sobre su experiencia.

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