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Caregiver Resources

The Sick Cells Blog

Welcome to the Sick Cells blog! This is our online forum for discussing and sharing key information
about sickle cell disease and community activities.

Through this forum, you’ll hear from Sick Cells’ staff, board members and external partners,
and of course SCD community members.

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Centering the Patient Voice: A New Type of Advocacy for SCD

Sick Cells caught up in the new year with two Sick Cells Ambassadors to reflect on their experience giving public comments at a 2021 Wisconsin Drug Utilization Review board meeting.

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A Warrior Through and Through: Life During a Pandemic

Sick Cells spoke with Whitney Carter, a SCD Warrior, about her mental health journey over the course of the pandemic. The effects of the COVID-19 pandemic have been felt everywhere. It has changed the way sickle cell disease Warriors are able to get care in the clinical setting, but it has also brought opportunities to the SCD community.

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Vax It Up To Protect Your Loved Ones

Sick Cells sat down with Adrienne Shapiro, the fifth generation of mothers in her family to have a child with sickle cell disease, to discuss the importance of getting the COVID-19 vaccine.

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Vivir mi Vida (English Version)

The goal of the Hispanic Outreach Promoting Equity (HOPE) Project is to understand how race and ethnicity have impacted the experiences of Hispanic individuals with sickle cell disease (SCD). Sick Cells sat down with Nilda Navedo, a sickle cell warrior, to hear her story.

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Vivir mi Vida

El objetivo del proyecto Hispanic Outreach Promoting Equity (HOPE) es entender cómo la raza y la etnicidad han impactado las experiencias de individuos Hispanos con la enfermedad de células falciformes. Sick Cells se sentó con Nilda Navedo, una luchadora de anemia falciforme, para escuchar su historia. 

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4 Things To Know About The Delta Variant

The news has been talking a lot about the Delta Variant of COVID-19, but what is it exactly? There’s a lot of information out there about the Delta variant, but here are some fast facts to know.

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Un Cuento de Dos Luchadores: La Anemia Falciforme y las Vacunas de COVID-19

Desde que la vacuna de COVID-19 fue aprobada para los luchadores de anemia falciforme, han habido muchas preguntas sobre la vacuna. Sick Cells se sentó virtualmente con dos luchadores, quienes recibieron ambas dosis de la vacuna, para hablar sobre su experiencia.

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Troubling Times for Blood Donation

On July 24th, Sick Cells hosted its 2nd annual Blood Drive in honor of Marqus Valentine, beloved SCD warrior and Sick Cells co-founder.

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A Tale of Two Warriors: COVID-19 Vaccines and Sickle Cell

Since the COVID-19 vaccine has been approved for sickle cell warriors, there have been a lot of questions about the vaccine. Sick Cells sat down virtually with two sickle cell warriors who received both doses of the vaccine to talk about their experience.

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Coping with a ‘New Normal’

Since March 2020, the world has been coping with a “new normal” of the COVID-19 pandemic. Hear what advocate and intern Rafia has to say about life full of changing guidelines on masking, social distancing, and quarantine.

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Faces of SCD Blog Series: Don’t Hesitate with Dennis McCullum

Sick Cells spoke with Dennis McCullum about living with SCD and his experience with contracting COVID-19

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Faces of SCD Blog Series: Finding Your Routine with Marissa Cors

Sick Cells sat down with Marissa Cors, a California native living with sickle cell Hgb SS, to discuss how she’s managed SCD for the last several decades.

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