REGISTRATION IS OPEN: Our 2026 Coverage & Therapeutics Conference will be Nov 4-5, 2026 in Bethesda, MD (with a virtual option)

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SCD Policy Forum

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Sick Cells’ annual SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.

This hands-on event is designed to inform sickle cell advocates on critical SCD policy priorities, train advocates on how to speak with their federal representatives to share what matters to the community, and match advocates with their federal representatives in a live Virtual Hill Day session.

What to Expect

Sick Cells works hard to ensure the Policy Forum and Hill Day provides the most interactive experience for our attendees. Sick Cells will offer several tools and features in order to assist in the preparedness and efficiency of our advocates:

1) Provide Materials. Sick Cells creates and shares a Federal Priorities One-Pager and advocacy toolkits to make sure advocates have what they need to share with their legislators.

2) Virtual Hill Day platform. Sick Cells offers a web-based platform for advocates to use during their virtual Hill Day meetings. Participants can access their schedules online, receive notifications and reminders, and connect with ease to the virtual meeting room.

  • Prior to the meetings, advocates can customize talking points to refer to during meetings, read legislator bios and information, and upload one-pagers or materials to be shared with congressional staff.
  • After the meetings, team leads can easily send thank you messages to the congressional staff with materials attached.

Previous Successes

Read about the successes from our previous years: