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Events

March 14, 2022

All Day

GRNDaD Speaks Series: Neuropsychological Functioning in SCD: Risk and Protective Factors

Conferences Virtual

Globin Research Network for Data and Discovery (GRNDaD) hosts a monthly, virtual sickle cell disease conference for clinical and basic science leaders in SCD.

Learn more and Register: HERE

Event Details

February 14, 2022

All Day

GRNDaD Speaks Series: New Management Paradigm for Recurrent Ischemic Priapism

Conferences Virtual

Globin Research Network for Data and Discovery (GRNDaD) hosts a monthly, virtual sickle cell disease conference for clinical and basic science leaders in SCD.

Learn more and Register: HERE

Event Details

December 10, 2021

11:00 am - 1:00 pm

Advancing Patient-Centered Outcomes and Impacts in Value Assessment Workshop

Webinars

PhRMA Foundation is hosting a webinar series titled “Advancing Patient-Centered Outcomes and Impacts in Value Assessment” to understand research needs to prioritize patients in comparative clinical and economic assessments.

This workshop is following 2 webinars and has the topic “Looking Forward: Opportunities Towards a Collaborative Research Agenda for Patient-Centered Evidence Generation and Broad Impact Beyond Current Models”

Learn More: HERE

Register: HERE

Event Details

November 29 - 30, 2021

All Day

IVI Annual Scientific Meeting

Conferences

This year’s Annual Scientific Meeting is going to be a hybrid event. The venue is TBD, and will largely depend on how many of our members decide to join in person versus virtual. The meeting will be held in Washington, DC.

Day One will be panel presentations with some discussion, and Day Two will be comprised largely of small group discussions with synthesis towards the end of the day.

Learn More and Register: HERE

Event Details

November 17 - 19, 2021

All Day

2021 PCORI Virtual Annual Meeting

Conferences Virtual

The PCORI Annual Meeting brings together members of the healthcare community, including researchers, patients, caregivers, clinicians, insurers, health system representatives, and other stakeholders. The event serves as a report to the nation on PCORI’s progress in funding initiatives to determine which care approaches work best, for whom, and under what circumstances.

Learn More: HERE

Register: HERE

Event Details

November 12, 2021

12:00 pm - 1:30 pm

Advancing Patient-Centered Outcomes and Impacts in Value Assessment Webinar #2

Webinars

PhRMA Foundation is hosting a webinar series titled “Advancing Patient-Centered Outcomes and Impacts in Value Assessment” to understand research needs to prioritize patients in comparative clinical and economic assessments.

The topic for the 2nd webinar is “Spotlight on Current and Emerging Approaches and Methods to Enhance Patient-Centricity and Inclusive Patient Engagement in Value Assessment”

Learn More: HERE

Register: HERE

Event Details

November 4, 2021

All Day

Maryland DURB Meeting

DUR Meetings

The Drug Utilization Review Board (DURB) will be meeting to discuss many topics, sickle cell disease treatments are included.

Event Details

November 3, 2021

All Day

IVI Annual Methods Summit: Prioritizing a National Action Agenda to Design Equitable Measures and Methods for Patient Priorities in Healthcare Value Assessment (invitation only)

Conferences

The Annual Methods Summit convenes health policy leaders, health care executives, patient leaders, and researchers to address critical challenges in patient-centered value assessment. During the 2021 Methods Summit, IVI will convene key leaders to build answers and consensus on the key questions: “What are the most important data inputs to represent patient preferences and patient outcomes?” and “How can we harness this data to drive insights in patient-centered outcomes research and value assessment?”

Learn More: HERE

Event Details

November 3, 2021

All Day

Nebraska P&T Meeting

DUR Meetings P&T Meetings

The Drug Utilization Review Board will be meeting to discuss many topics, sickle cell disease treatments are included.

Event Details

November 3, 2021

All Day

Wisconsin P&T Meeting

DUR Meetings P&T Meetings

The P&T committee will be meeting to discuss many topics, sickle cell disease treatments are included.

Event Details

October 27, 2021

All Day

IVI Annual Methods Summit

Conferences

The Annual Methods Summit convenes health policy leaders, health care executives, patient leaders, and researchers to address critical challenges in patient-centered value assessment. During the 2021 Methods Summit, IVI will convene key leaders to build answers and consensus on the key questions: “What are the most important data inputs to represent patient preferences and patient outcomes?” and “How can we harness this data to drive insights in patient-centered outcomes research and value assessment?”

Learn More: HERE

Event Details

October 23, 2021

All Day

Improving Health Care Experiences in the Rare Disease Community

Conferences Virtual

Rare New England’s (RNE) annual conference will be held virtually this year. This year’s theme is RESILIENCE and we will hear from a panel of caregivers and patients, a panel of health care professionals, and speakers with Medical, Legal and Legislative experience. We will also hear from several organizations that bring helpful resources to the complex disease community.

Learn More and Register: HERE

Event Details

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