Hosted by the American Society of Hematology (ASH), the ASH SCD Centers Workshop is a 4-day workshop developed to train health care professionals to establish a clinical center focused on the needs of adults living with SCD. The workshop will walk participants through the common components of such centers, the process for developing a business plan and advocating to stakeholders, the ins and outs of operations, and approaches to measuring impact and improve on the quality of care provided in these centers.
Hosted by Biotechnology Innovation Organization (BIO), the BIO Patient & Health Advocacy Digital Summit is a 2-day virtual conference that will bring together patient advocacy organizations, academia, regulators, biotechnology industry, and other stakeholders for two days of robust programming to discuss timely policy issues and share best practices.
Hosted by NORD, the Rare Diseases and Orphan Products Breakthrough Summit is a 2-day virtual conference connecting stakeholders to advance meaningful dialogue and assure access to care for all. As technology in rare disease accelerates, and with topics related to public health and drug pricing being top priorities in government, we must act now to drive innovation, collaborate for better outcomes, and assure access to care for all. This conference addresses the impacts of COVID-19 on the SCD community and topics on building a stronger healthcare system. Audience: Medical providers, pharma, government, nonprofits.
Hosted by the National Institutes of Health (NIH): National Heart, Lung and Blood Institute (NHLB), this two-day conference will explore how to use new data and technology to see how someone’s location, income, gender, ethnicity, and other factors determine their health (social determinants of health). FREE. Audience: Data scientists, digital and tech experts, health educators, health researchers, Policymakers.
Hosted by Martin Center Sickle Cell Initiative, the 2020 Indiana Sickle Cell Conference is a one-day Sickle Cell Disease conference will feature educational sessions on building awareness, health complications, and sickle cell trait. Audience: Patients, caregivers, families, medical providers, social workers.
Hosted by Biotechnology Innovation Organization (BIO), the BIOtechnical Advocacy Lab: Creating Video Content for Advocacy is a webinar explaining how to identify what you need to create a video to highlight your top advocacy issues from pre-production to distribution. You’ll learn how to plan and create a compelling online video that will educate, inform, and mobilize your target audience.
Hosted by FSCDR, the 14th Annual SCD Research & Educational Symposium and 43rd National SCD Scientific Meeting is an exciting three-day meeting inviting more than 400 leading researchers, physicians, clinicians, stakeholders, advocates, and social workers with the common goal of finding better treatment, and ultimately, a cure for sickle cell disease. Audience: Medical providers, medical researchers, social workers.