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Events

February 16 - 19, 2021

All Day

ASH Sickle Cell Disease Centers Workshop

SCD Conferences

Hosted by the American Society of Hematology (ASH), the ASH SCD Centers Workshop is a 4-day workshop developed to train health care professionals to establish a clinical center focused on the needs of adults living with SCD. The workshop will walk participants through the common components of such centers, the process for developing a business plan and advocating to stakeholders, the ins and outs of operations, and approaches to measuring impact and improve on the quality of care provided in these centers.

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November 21, 2020

7:00 pm - 9:30 pm

Cognitive Challenges in Sickle Cell Disease: Executive Function and Beyond Virtual Event

SCD Conferences

Hosted by Cayenne Wellness Center, the Cognitive Challenges in Sickle Cell Disease: Executive Function and Beyond Virtual Event is the 1st of a 3-part mini seminar about the brain and executive function in sickle cell disease. Registration is Free.

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November 19, 2020

12:00 pm - 1:00 pm

Priority Topic Meeting (PTM)

Ambassador Program

Check out our Ambassador Program page to learn more about our PTMs and how you can get involved as an Ambassador.

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November 19 - 22, 2020

All Day

7th Annual Sickle Cell Disease Patient & Family Educational Symposium (Virtual)

SCD Conferences

Also known as The Warriors Convention, The 7th Annual Sickle Cell Disease Patient & Family Educational Symposium is an annual event designed, created, and hosted by sickle cell patients and family members. This years’ theme is “Citizen Scientist: Harnessing the Power of the Patient and Caregiver Voice.”

 

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November 3, 2020

2:00 pm - 6:00 pm

Georgia Medicaid P&T Meeting: Review of SCD Treatments

DUR Meetings
Event Details

October 28 - 29, 2020

All Day

2020 BIO Patient & Health Advocacy Summit (Virtual)

SCD Conferences

Hosted by Biotechnology Innovation Organization (BIO), the BIO Patient & Health Advocacy Digital Summit is a 2-day virtual conference that will bring together patient advocacy organizations, academia, regulators, biotechnology industry, and other stakeholders for two days of robust programming to discuss timely policy issues and share best practices.

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October 22, 2020

4:00 pm - 5:00 pm

Priority Topic Meeting (PTM)

Ambassador Program

Check out our Ambassador Program page to learn more about our PTMs and how you can get involved as an Ambassador.

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October 14 - 17, 2020

All Day

SCDAA’s 48th Annual National Convention 2020 (virtual)

SCD Conferences

Click for more information.

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October 8 - 9, 2020

All Day

2020 Rare Diseases and Orphan Products Breakthrough Summit (Virtual)

SCD Conferences

Hosted by NORD, the Rare Diseases and Orphan Products Breakthrough Summit is a 2-day virtual conference connecting stakeholders to advance meaningful dialogue and assure access to care for all. As technology in rare disease accelerates, and with topics related to public health and drug pricing being top priorities in government, we must act now to drive innovation, collaborate for better outcomes, and assure access to care for all. This conference addresses the impacts of COVID-19 on the SCD community and topics on building a stronger healthcare system. Audience: Medical providers, pharma, government, nonprofits.

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September 30, 2020

All Day

Understanding Gene Editing for Sickle Cell Disease (Lunch & Learn Webinar)

SCD Conferences

Hosted by Sickle Cell Thalassemia Patients Network (SCTPN), Please join William Hobbs, MD, PhD, VP Clinical Development, Hematology, Vertex Pharmaceuticals, for a virtual Lunch & Learn presentation and discussion about Gene Editing for Sickle Cell Disease. FREE. Audience: Everyone.

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September 29 - 30, 2020

9:00 am - 5:00 pm

Harnessing Novel Data Sources and Technologies for the Study of Social Determinants of Health (SDOH) in Heart, Lung, Blood, and Sleep (HLBS) Disorders (Virtual)

SCD Conferences

Hosted by the National Institutes of Health (NIH): National Heart, Lung and Blood Institute (NHLB), this two-day conference will explore how to use new data and technology to see how someone’s location, income, gender, ethnicity, and other factors determine their health (social determinants of health). FREE. Audience: Data scientists, digital and tech experts, health educators, health researchers, Policymakers.

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September 25, 2020

All Day

2020 Indiana Sickle Cell Conference

SCD Conferences

Hosted by Martin Center Sickle Cell Initiative, the 2020 Indiana Sickle Cell Conference is a one-day Sickle Cell Disease conference will feature educational sessions on building awareness, health complications, and sickle cell trait. Audience: Patients, caregivers, families, medical providers, social workers.

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