The 2024 Coverage for SCD Summit will be a virtual event on Tuesday, December 10 from 12:00-400 pm ET.
The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.
This year’s event will feature sessions on:
Sickle cell disease is a rare genetic disorder, affecting approximately 100,000 individuals in the U.S., and disproportionately affecting Black and Brown populations. Treatment advances are emerging, yet barriers to access contribute to underutilization. Racial inequities and health disparities add to poor health outcomes and gaps in access.
Agenda subject to change
12:00 PM – 12:05 PM | Welcome |
12:10 PM – 12:40 PM | Keynote
Aurelia Chaudhury |
12:45 PM – 01:15 PM | Medicaid Access Today: 2024 Readout of Medicaid Access and Landscape Review for SCD
Medicaid Access Today: A 2024 readout of the Medicaid Access and Landscape Review for Sickle Cell Disease, providing insights into current coverage, challenges, and healthcare disparities faced by patients with this condition. Speaker: Mariah Jacqueline Scott, M.S., M.P.H
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01:20 PM – 01:50 PM | Leading the Way: Payers Discuss Sickle Cell Coverage Initiatives Panel
In this session, we hear from both a Commercial Payer and a State Medicaid Director as they share their strategies and initiatives to improve access to care for individuals with sickle cell disease, highlighting current efforts to expand coverage and address disparities in treatment. Speakers: Dr. Jennifer Strohecker, PharmD
Emily Tsiao, PharmD, BCPS |
01:50 PM – 02:00 PM | Break 1 |
02:00 PM – 02:20 PM | The CMS Cell and Gene Therapy Access Model: Transforming Sickle Cell Disease Treatment
This session will provide an in-depth overview of the CMS Innovation Center’s Cell and Gene Therapy Model, highlighting how it aims to enhance access to cutting-edge treatments for sickle cell disease, while addressing challenges related to affordability, implementation, and equitable care delivery. Speaker: Elizabeth Hassett |
02:25 PM – 02:35 PM | Breaking Barriers: My Experience with Accessing New Sickle Cell Therapies
In this session, we will hear from a person with SCD as they share their personal journey of accessing groundbreaking cell and gene therapy for sickle cell disease, highlighting the challenges, successes, and the transformative impact of these innovative treatments on their health and life. Speaker: Jimi Olaghere |
02:40 PM – 03:00 PM | Building Knowledge Through the Community: The Consolidated Learning System for Sickle Cell Gene Therapy
This session will explore the community learning system within the CMS Innovation Center’s cell and gene therapy model, highlighting how collaborative networks and shared knowledge are driving the successful implementation and expansion of gene therapies for sickle cell disease. Speaker: Nikki Braccio, PharmD |
03:00 PM – 03:10 PM | Break 2 |
03:10 PM – 03:40 PM | Navigating Coverage Gaps: The Critical Role of CBOs in Sickle Cell Healthcare Panel
This session will explore the critical role of community-based organizations (CBOs) in navigating the complex landscape of coverage gaps in sickle cell disease healthcare. Attendees will gain insights into how CBOs are addressing disparities in access to care, advocating for patients, and driving innovation in local and national healthcare systems. The discussion will highlight successful strategies used by CBOs to bridge gaps in insurance coverage and enhance patient outcomes through community-centered solutions. Speakers: Theresa Ginger Davis
Linda Thomas Wade
Tabatha McGee |
03:45 PM – 03:55 PM | Closing |
Learn more about our previous Coverage for SCD Summits: