Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our Programs

Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.

Our network of sickle cell ambassadors meet regularly to discuss the community's needs, how to best educate our peers, and how to engage in policy at all levels.

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There’s on one face or “look” of SCD, and we’re determined to highlight the challenges affecting families within the community.

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All advocates need timely and accurate information to make a difference. Take a look at how we’ve activated the community to take on important challenges within policy and legislation.

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With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.

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Every year, we help educate and prepare sickle cell advocates to speak directly to state reps.

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Getting treatment and insurance coverage can vary patient to patient. We work to bring awareness to these gaps and ill-informed practices.

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When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.

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We help sickle cell advocates prepare to attend Medicaid DURB and P&T meetings to provide public comments and improve access to treatments.

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We partner with organizations to conduct research and surveys that help drive our advocacy work.

You'll learn how to advocate for the sickle cell community on a new level.

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We're looking for leaders that can provide recommendations and advice to our staff.

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Throughout the year we take on new interns who gain valuable experience.

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We love to hear from members of the sickle cell community - people living with SCD, their family members, caregivers and friends. Share your story to help us show just how diverse this powerful community is.

Share My Story

Every donation helps us better serve the community.

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We love to share what we've learned. Let us know how we can partner with you at your events.

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Sign up for our newsletter!

We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.

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February Newsletter (2025)

This month, we recap our time at Rare Disease Week, congratulate Talana Hughes, and highlight an article by former staff member Mariah Scott.

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January Newsletter (2025)

This month, we kick off the year with opening registration for the 2025 SCD Policy Forum, recapping a Kwanza Celebration, and sharing about a new SCD drama series.

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December Newsletter (2024)

This month we highlight our Coverage for SCD Summit as well as share a quick message from our President.

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Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey

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Join our Advisory Board

Interest in Advisory Board

  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through Advisory Boards. We recruit diverse representatives from clinicians, patients, and experts in scientific and health services fields to provide recommendations and advice to our staff. Please complete this form to be notified when the application process reopens for our Advisory Board Application.
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Ask About our Internships

  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through our Internship Program. Please complete this form to be notified when the application process reopens for our Internship.
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Request a Speaker

Request a Speaker

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