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PCORI Engagement Award: Defining Value and Supporting Equity in Sickle Cell Disease

Sick Cells worked in collaboration with the University of Southern California Hematology Utilization Group Studies (USC HUGS) and the Comparative Health Outcomes, Policy, and Economics (CHOICE) Institute at University of Washington School of Pharmacy, to identify and assess core elements of value to be incorporated into SCD research measures.

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Barriers to the Use of Disease-Modifying Treatments in Sickle Cell Disease

Sick Cells collaborated with the University of Pittsburgh to study the barriers to accessing disease-modifying treatments.

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Health-Related Quality of Life, Disease Impacts, and Health Equity Survey

Sick Cells collaborated with QC Medica and Vertex Pharmaceuticals to survey individuals living with sickle cell disease (SCD) on the impacts of the disease on quality of life and health quality.

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SCD Patient and Caregiver Preference Study Summary

Pfizer worked with Sick Cells to develop a survey to understand how much different features of potential sickle cell treatments matter to people with sickle cell disease and caregivers of people with sickle cell disease.

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