About Us
Sick Cells is a national advocacy nonprofit for sickle cell disease (SCD). Originally a documentary project started in 2008, Sick Cells grew to much more and was founded as a 501C3 nonprofit in 2017.
Sick Cells is a national advocacy nonprofit for sickle cell disease (SCD). Originally a documentary project started in 2008, Sick Cells grew to much more and was founded as a 501C3 nonprofit in 2017.
Sick Cells’ mission is to elevate the voices of the SCD community and our stories of resilience. In highlighting the challenges our community faces, we will influence decision-makers and propel change.
Ambassador Program
Our network of sickle cell ambassadors meet regularly to discuss the community’s needs, how to best educate our peers, and how to engage in policy at all levels. Learn More
Faces of SCD Storytelling Program
There’s on one face or “look” of SCD, and we’re determined to highlight the challenges affecting families within the community. Learn More
public interest making sickle cell a public health concern
SCD, which is a relatively invisible disease that affects people from all walks of life
the general public, who do not typically recognize their day-to-day encounters with SCD, to advocate for SCD
policy makers, educators, employers, healthcare administrators and healthcare providers to act to improve treatment and care for the SCD population
research and drug development that will lead to better treatments
the sickle cell community, regardless of hemoglobin type, to share their stories and know that they are not alone
Through these actions, we hope to improve the quality of life and care for people living with the most common genetic disorder by challenging current policy and shifting social norms.