Newsletters

This month we talk about Rare Disease Week, New Jersey Advocacy Day, and updates about our own upcoming Policy Forum.

This month we’re sharing information about our upcoming Policy Forum, the newly announced Cell and Gene Therapy Payment Model, some exciting projects, and more.

This month, we close out the year with a letter from the team, some exciting announcements, and some program updates.

This month we have a Minute with Marqus, highlight fundraisers, and announce our 2024 SCD Policy Forum Save the Date.

This month we have a Minute With Marqus featuring Fran Valentine, thank the SCDAA for a wonderful event, and share information about the FDA Advisory Committee meeting.

This month we talk about the upcoming FDA Advisory Committee meeting, thank our supporters from sickle cell awareness month, and talk about some fun upcoming events.

This month, we successfully hosted our Coverage for SCD Summit, announced some exciting fundraisers, have some news you can use, and our Minute With Marqus has guest star Francesca Valentine discussing coping with pain through hobbies and passions.

This month, we’re celebrating Marqus’s Heavenly Birthday, providing an update for our 2023 Coverage for SCD Summit, and discussing how to host a Fundraiser Party for Sick Cells.

This month, we recognize Sick Cells Remembrance Week, share news about exciting upcoming events, and highlight some of the great work the Sick Cells team completed this month.

This month’s newsletter includes an exciting presentation, our work during the new ICER Review, our Mental Health Awareness Month blog, and more!

This month, we showcase our new Thrive Over 55 Faces of SCD Campaign, our call to action for the 2023 ICER Review, a Minute with Marqus and many other highlihts.

This month, we are excited to announce the success of the first-ever National SCD Policy Forum, a spring time Minute with Marqus and some news you can use