Sick Cells and Avalere Health want to thank our Dialogue attendees for sharing so many interesting ideas which helped us create a Roadmap on how to advance care for individuals with SCD.

Read the Roadmap

Newsletters

Every month, you can count on a carefully curated
Newsletter from the Sick Cells team.

We do our best to round up the latest in treatment and policy news, spotlight SCD warriors,
and give you a Minute with Marqus. Sign up for our newsletter to ensure you get your
monthly dose of sickle cell news.

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March 2021

Happy Spring! Like the trees and flowers in some parts of the country, Sick Cells was in full bloom this month. We’re honored to be able to advocate for the sickle cell disease (SCD) community via a variety of platforms and mediums. From letters to policy forums to virtual lobbying – we’re keeping the momentum going throughout 2021.

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February 2021

This month, we’ll highlight Sick Cells’ first-ever Your Black History Month campaign and our Ambassador Priority Topic Meeting with Liweli CBD. We’ll also discuss our March Policy Forum and share a new blog post and, as always, we’ve selected some News You Can Use!

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January 2021

This month, we’ll discuss our upcoming Your Black History Month campaign, the March 2021 Policy Forum, the Sick Cells + Avalere Roadmap, some recent blogs to catch up on and some News You Can Use!

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December 2020

On the final day of 2020 — a year like no other — we’re reflecting on some of the important lessons we learned over the last 12 months.

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November 2020

While the year is coming to a close, there’s no slowing down in sight. This month, we’ll discuss the #FundSickleCell Movement, share updates on this year’s Giving Tuesday and introduce our new Program Manager.

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October 2020

It’s hard to believe that after this weekend, we’ll only have two months left in 2020. While this year has been one of unprecedented challenges, it’s also presented new opportunities for the sickle cell disease (SCD) community. In these final 60 days, we’re focusing on finishing strong and hope you can find the motivation to do so, as well.

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September 2020

A Sickle Cell Awareness Month to Remember! Team Sick Cells did a lot of planning for National Sickle Cell Awareness Month. We prepared content, social media posts and Instagram Lives with a goal to, as always, spread as much helpful information as possible on sickle cell disease (SCD)….

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White House Edition: Part Two

On Monday, September 14, we attended a roundtable discussion hosted by the First Lady of the United States to mark Sickle Cell Awareness Month and discuss the challenges that our community continues to face. We learned that this type of meeting happens once in a lifetime and were honored to represent the SCD community while there.

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White House Edition: Part One

Sick Cells is proud to continue our work with the Assistant Secretary of Health, Admiral Brett Giroir under the Department of Health and Human Services Office of Minority Health. This work is driving change to advance the care and improve the quality of life for people with sickle cell disease. We will attend a historic roundtable discussion with the First Lady of the United States entitled, “Improving the Lives of Americans with Sickle Cell Disease.”

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August 2020

While things are different this year, we’re still happy with our progress. A revamped website, a thriving ambassador program and a successful blood drive all point to our momentum. We keep moving forward. It’s what Marqus would’ve wanted.

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July 2020

This month, we’ll recap Marqus’ memorial service and blood drive, highlight our new website and recent blog posts, and we’ll have some News You Can Use!

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June 2020

It is with a heavy heart that we formally announce the passing of our co-founder, son, brother, uncle, cousin, friend and teammate, Marqus Valentine. Marqus gained his warrior wings on Monday, June 22, after 36 years of so much life. Words cannot explain how incredibly devastating this news is for the Valentine family and all of those who knew and loved Marqus. This month, we’ll honor and remember our eternal angel.

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May 2020

For the last several months we’ve encouraged the community to stay vigilant, healthy and safe amid the COVID-19 outbreaks and we’ll continue to do so for the foreseeable future. Now, more than ever, our community must continue to encourage each other to practice being safe.

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