Newsletters

This month we talk about the upcoming FDA Advisory Committee meeting, thank our supporters from sickle cell awareness month, and talk about some fun upcoming events.

This month, we successfully hosted our Coverage for SCD Summit, announced some exciting fundraisers, have some news you can use, and our Minute With Marqus has guest star Francesca Valentine discussing coping with pain through hobbies and passions.

This month, we’re celebrating Marqus’s Heavenly Birthday, providing an update for our 2023 Coverage for SCD Summit, and discussing how to host a Fundraiser Party for Sick Cells.

This month, we recognize Sick Cells Remembrance Week, share news about exciting upcoming events, and highlight some of the great work the Sick Cells team completed this month.

This month’s newsletter includes an exciting presentation, our work during the new ICER Review, our Mental Health Awareness Month blog, and more!

This month, we showcase our new Thrive Over 55 Faces of SCD Campaign, our call to action for the 2023 ICER Review, a Minute with Marqus and many other highlihts.

This month, we are excited to announce the success of the first-ever National SCD Policy Forum, a spring time Minute with Marqus and some news you can use

This month we are reflecting on Marqus maintaining a journal tracking his year-long experience taking Endari in 2018. We’re preparing for Rare Disease Week and our own National SCD Policy Forum and we’re sharing some news you can use.

This month we welcome the new year with new growth, new events, and more!

We are wishing everyone a healthy, peaceful and prosperous New Year. Thank you for all of the continued support and love. Read on for a minute with Marqus and some exciting highlights from this year.

This month, we’re reflecting on a special Thanksgiving message from Marqus from 2013, some exciting events, and some news you can use.

This month, we have our Minute With Marqus, a fun event, and a trip to the Hill.