Newsletters

This Month, we celebrate Pride with some new and returning Faces, share about upcoming events, and call on the community to join us in our efforts to educate CMS about the impacts of the Medicaid Work Requirements rule.

This month, we highlight some new additions to our staff, share updates from our Ambassador Program, and share some exiting events.

This month, we highlight a new story, updates from our Clinical Trial and Treatment Webinar, and share information about a scholarship opportunity.

This month, we announce the relaunch of the SCD Caucus, recap a successful Policy Forum, and share some exciting upcoming opportunities.

This month, we look forward to the Policy Forum and Connecting the Dots in March, recap our time at Rare Disease Week and the ICH E22 meeting.

As we enter a new year, we are taking a new approach to honoring a familiar voice. Starting this month, we are transitioning our long-standing “Minute with Marqus” to “Memories with Marqus.” Join us as we celebrate his legacy through cherished stories from those who knew and loved him, and, as always, words from Marqus himself. We also share more information about some upcoming events you wont want to miss.

This month, we discuss some of our favorite moments from the year as we wrap up 2025!

This month, we hear a Thanksgiving message in our Minute with Marqus, recap our successful Therapeutics Conference, share a new Faces of SCD Story, and more!

This month, we remind everyone to join us for the upcoming Therapeutics Conference, announce a few new blogs, and share some conference season wins.

In this special issue, we call on the community to register for the upcoming Sick Cells Therapeutics Conference as well as come see us at the SCDAA Annual Convention. We also introduce this year’s Community Outreach Fellows and share some fun therapeutic riding day photos.

This month, we wrap up Sickle Cell Awareness Month and announce our inaugural Sick Cells Therapeutics conference.