December Newsletter (2024)
This month we highlight our Coverage for SCD Summit as well as share a quick message from our President.
This month we highlight a Giving Tuesday request and some exciting events.
This month we highlight some of our sickle cell awareness month activities.
This month we highlight some of our plans for the upcoming sickle cell awareness month and conference season.
This month, Sick Cells highlights why raising funds = raising awareness as we kick off our Summer Bash Fundraisers for Sickle Cell.
This month in our Minute with Marqus we reflect on a message from Marqus on what it means to be a sickle cell warrior. This month we also share our latest reports, an upcoming Summer Bash campaign and highlight the Mastering Advocacy Through Personal Branding and Earned Media Strategies discussed at our PTMs.
This month, we discuss DURB and P&T meeting updates including an upcoming Town Hall, provide some News You Can Use, and hear from Francesca Valentine in our Minute with Marqus.
This month we share results from our Policy Forum and participation in the STAT Breakthrough Summit.
This month we talk about Rare Disease Week, New Jersey Advocacy Day, and updates about our own upcoming Policy Forum.
This month we’re sharing information about our upcoming Policy Forum, the newly announced Cell and Gene Therapy Payment Model, some exciting projects, and more.
This month, we close out the year with a letter from the team, some exciting announcements, and some program updates.