Every month, you can count on a carefully curated
Newsletter from the Sick Cells team.
We do our best to round up the latest in treatment and policy news, spotlight SCD warriors,
and give you a Minute with Marqus. Sign up for our newsletter to ensure you get your
monthly dose of sickle cell news.
September is National Sickle Cell Awareness Month. All month long, our community of individuals living with sickle cell disease, their caregivers, advocates, healthcare providers, and others come together to bring awareness to the disease.
We’ve always been a believer in strength in numbers. Our mission cannot be fulfilled alone. It takes a community coming together to make positive change. We’re forever grateful for Marqus’s wisdom. Read about this month’s highlights and some news you can use!
This month, Sick Cells established its federal policy priorities for the year (more details, below) and we couldn’t help but think of Marqus’s passion for advocacy. Marqus was passionate about raising awareness in all ways from personal one-to-one peer relationship to advocating at the state and national level. Read more about it as well as this month’s highlights, Faces of SCD Campaign, and some news you can use.
Hello, 2022! As we close out the year, we took time to reflect on yet another year of progression within the sickle cell disease community. The year was also met with more uncertainty amid the pandemic and challenges. Nevertheless, we continued to move forward. We listened, learned, grew and took steps to continue building a better future for those living with sickle cell, and the wider rare disease community.
This month, we are presenting our favorite milestones from 2021. While there were plenty more than five moments—and they’re listed in no particular order—team Sick Cells thought these were worth highlighting. We’ll have some News You Can Use…but first, a special Minute With Marqus featuring our Co-Founder and President, Ashley Valentine.