Every month, you can count on a carefully curated
Newsletter from the Sick Cells team.
We do our best to round up the latest in treatment and policy news, spotlight SCD warriors,
and give you a Minute with Marqus. Sign up for our newsletter to ensure you get your
monthly dose of sickle cell news.
As we close out a hot August, we’re on the cusp of a very important time for sickle cell disease (SCD) warriors, caregivers and advocates across the nation — Sickle Cell Awareness Month! Every September, voices come together to raise awareness for sickle cell and the needs of the community. While many advocate year round, we are excited to raise our voices and propel positive change all month long.
This month, we’ll share the latest updates from Project SCoviD, highlight today’s Coverage for SCD Summit and conferences to have on your radar. We’ll have some News You Can Use, but first…
We cannot let July end without wishing a very Happy Heavenly Birthday to our winged warrior and co-founder, Marqus. To honor Marqus’s legacy, Sick Cells hosted its second annual Celebration of Life Blood Drive. Read more about the event here!
This month, we’ll discuss our quickly approaching Coverage for SCD Summit and the latest updates from Project SCoviD. We’ll have some News You Can Use, but first…
Last month, we introduced Project SCoviD — a collaborative Instagram and Facebook account that shares important information on COVID-19 and COVID-19 vaccines as they relate to sickle cell disease. This month, we’re excited to share it is live! Follow us at @project_scovid on Instagram and Facebook, and share it with your family and friends.
In this newsletter, we’ll honor nurses, highlight recent partnerships and share important policy updates.
It’s hard to think that we’ve been living through the COVID-19 pandemic for more than a year. While there have been many developments that have mitigated the threats of the pandemic, it is still greatly impacting our daily lives. As we navigate the new normal, together, we’re excited to introduce a new project that centers around the needs of the sickle cell disease (SCD) community: SCoviD.
This month, we’ll introduce Project SCoviD, reflect on recent speaking opportunities and policy updates.
Happy Spring! Like the trees and flowers in some parts of the country, Sick Cells was in full bloom this month. We’re honored to be able to advocate for the sickle cell disease (SCD) community via a variety of platforms and mediums. From letters to policy forums to virtual lobbying – we’re keeping the momentum going throughout 2021.
This month, we’ll highlight Sick Cells’ first-ever Your Black History Month campaign and our Ambassador Priority Topic Meeting with Liweli CBD. We’ll also discuss our March Policy Forum and share a new blog post and, as always, we’ve selected some News You Can Use!
While the year is coming to a close, there’s no slowing down in sight. This month, we’ll discuss the #FundSickleCell Movement, share updates on this year’s Giving Tuesday and introduce our new Program Manager.
It’s hard to believe that after this weekend, we’ll only have two months left in 2020. While this year has been one of unprecedented challenges, it’s also presented new opportunities for the sickle cell disease (SCD) community. In these final 60 days, we’re focusing on finishing strong and hope you can find the motivation to do so, as well.
A Sickle Cell Awareness Month to Remember! Team Sick Cells did a lot of planning for National Sickle Cell Awareness Month. We prepared content, social media posts and Instagram Lives with a goal to, as always, spread as much helpful information as possible on sickle cell disease (SCD)….
On Monday, September 14, we attended a roundtable discussion hosted by the First Lady of the United States to mark Sickle Cell Awareness Month and discuss the challenges that our community continues to face. We learned that this type of meeting happens once in a lifetime and were honored to represent the SCD community while there.