September is National Sickle Cell Awareness Month. All month long, our community of individuals living with sickle cell disease, their caregivers, advocates, healthcare providers, and others come together to bring awareness to the disease.
This month, Sick Cells established its federal policy priorities for the year (more details, below) and we couldn’t help but think of Marqus’s passion for advocacy. Marqus was passionate about raising awareness in all ways from personal one-to-one peer relationship to advocating at the state and national level. Read more about it as well as this month’s highlights, Faces of SCD Campaign, and some news you can use.
New year, new newsletter! We hope you love our fresh look!
Hello, 2022! As we close out the year, we took time to reflect on yet another year of progression within the sickle cell disease community. The year was also met with more uncertainty amid the pandemic and challenges. Nevertheless, we continued to move forward. We listened, learned, grew and took steps to continue building a better future for those living with sickle cell, and the wider rare disease community.
This month, we are presenting our favorite milestones from 2021. While there were plenty more than five moments—and they’re listed in no particular order—team Sick Cells thought these were worth highlighting. We’ll have some News You Can Use…but first, a special Minute With Marqus featuring our Co-Founder and President, Ashley Valentine.
Happy November! With the end of conference season, it’s been fulfilling to see so many familiar faces and connect virtually with the sickle cell disease (SCD) community in meaningful ways. We’re always reminded of how special this community is and the wonderful work that’s being done…
Hello, Autumn! With Sickle Cell Awareness Month coming to an end, that means we’re also saying “so long” to another hot summer. From blood drives to Summits to Project SCoviD, summer ’21 was a busy one for Sick Cells, and we’re gearing up for a packed fall. This month, we’ll share the latest conferences you should have on your radar, show you how we’re celebrating Hispanic Heritage Month and recap some project SCoviD updates.
As we close out a hot August, we’re on the cusp of a very important time for sickle cell disease (SCD) warriors, caregivers and advocates across the nation — Sickle Cell Awareness Month! Every September, voices come together to raise awareness for sickle cell and the needs of the community. While many advocate year round, we are excited to raise our voices and propel positive change all month long.
This month, we’ll share the latest updates from Project SCoviD, highlight today’s Coverage for SCD Summit and conferences to have on your radar. We’ll have some News You Can Use, but first…