Every month, you can count on a carefully curated
Newsletter from the Sick Cells team.
We do our best to round up the latest in treatment and policy news, spotlight SCD warriors,
and give you a Minute with Marqus. Sign up for our newsletter to ensure you get your
monthly dose of sickle cell news.
This month, we successfully hosted our Coverage for SCD Summit, announced some exciting fundraisers, have some news you can use, and our Minute With Marqus has guest star Francesca Valentine discussing coping with pain through hobbies and passions.
This month we are reflecting on Marqus maintaining a journal tracking his year-long experience taking Endari in 2018. We’re preparing for Rare Disease Week and our own National SCD Policy Forum and we’re sharing some news you can use.