Special Newsletter: #KeepCountingSCD, Help Us Protect SCD Data and Services
The SCDC program is in jeopardy. We are asking the SCD community to mobilize and take action.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Authority Magazine, a Medium publication, spoke with Ashley Valentine about her life and work in the sickle cell community.
The New York Times talks to the sickle cell community about upcoming gene therapies.
Press Release regarding Sick Cells and Innovation and Value Initiative (IVI)’s joint white paper published October 20, 2022
Sick Cells President and Co-Founder, Ashley Valentine, spoke with The New Yorker.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
Sick Cells met with Olivia Sessi—a first-time participant in the annual Sickle Cell Disease (SCD) Policy Forum—to learn about her experience meeting with federal representatives. For Olivia, a first-time advocate, mother, entrepreneur, and caregiver, this is a mission rooted in love, survival, and hope.
Sick Cells sat down with Mariah Jacqueline Scott, MS, MPH–sickle cell warrior and former Sick Cells Research Coordinator–to discuss a newly published research article she contributed to as a part of her doctoral program in Prevention Science at Rutgers University. The study, published by SAGE Publications in the Journal of Medical Education and Curricular Development, explores how medical students are impacted by serving as similar-aged “peer” mentors to young adults with sickle cell disease during the transition from pediatric to adult care.