View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
The Chicago Tribune released an article regarding the loss of Sick Cells’ co-founder, Marqus Valentine.
Ashley is a Co-Founder and President of Sick Cells nonprofit. She is the youngest sibling of her family. Her older brother and Co-Founder of Sick Cells, Marqus Valentine, has sickle cell anemia, Hgb ss.
The disease is complex physiologically, manifesting itself differently in every carrier, but also sociologically, bringing in factors like racial bias, since sickle cell is believed to be most common among minority groups, particularly African Americans.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
A collection of information about the FDA approved sickle cell treatments Endari™, Oxbryta™ and Adakveo®.
The Valentine family is hosting a blood drive in Lisle, IL on Saturday — Marqus’ birthday. The donations will go to Marqus’ home hospital, where he received many blood transfusions. Many patients with sickle cell disease (SCD) rely on blood transfusions for treatment.
See an event you’re interested in? Join us.
September 1 - 30, 2020
All Day
The CURE SICKLE CELL NOW Move-On Event will be a month-long event throughout September 2020. Howard University invites you to register, and they will mail you a t-shirt that you can wear all month while getting your move-on – walking, running, dancing, anything you like. The month will be full of online activities, including Zumba, kickboxing, yoga classes, and other activities for all ages and abilities. Closing Ceremony on September 30th. Cost is $0-$25. Audience: Everyone!
September 23 - 25, 2020
All Day
Hosted by FSCDR, the 14th Annual SCD Research & Educational Symposium and 43rd National SCD Scientific Meeting is an exciting three-day meeting inviting more than 400 leading researchers, physicians, clinicians, stakeholders, advocates, and social workers with the common goal of finding better treatment, and ultimately, a cure for sickle cell disease. Audience: Medical providers, medical researchers, social workers.
Stay informed. Whether it be news on treatments, laws or activism, sickle cell
information is always churning.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.
FT-4202 — an investigational treatment for sickle cell disease (SCD) — has a favorable safety profile and the expected biological effects, providing preliminary support of efficacy, according to data from an ongoing Phase 1 clinical trial.
