This month, we successfully hosted our Coverage for SCD Summit, announced some exciting fundraisers, have some news you can use, and our Minute With Marqus has guest star Francesca Valentine discussing coping with pain through hobbies and passions.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Authority Magazine, a Medium publication, spoke with Ashley Valentine about her life and work in the sickle cell community.
Press Release regarding Sick Cells and Innovation and Value Initiative (IVI)’s joint white paper published October 20, 2022
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
In 2022, Sick Cells conducted an analysis of existing state legislation specific to sickle cell disease. We also provide monthly updates on notable state bills. This blog highlights some of the state bills we have been covering and why they are important.
This blog will present the results of our recent project funded by the 2022 PCORI Engagement Award to highlight what matters most to SCD warriors and the community. This blog will also describe the importance of patient-reported outcomes and how they should be incorporated into SCD research.
See an event you’re interested in? Join us.
September 26 - 29, 2023
This virtual Summit will discuss how data from the 11 states participating in the SCD Data Collection Program and partner groups is used for action. The summit will also feature work from partner groups and the 11 states themselves.
Learn More: HERE
September 28, 2023
Hosted by UIC’s Improving Sickle Cell Care in Adolescents & Adults in Chicago (ISAAC), the6th Annual Chicago Sickle Cell Summit has the theme “Thriving with Sickle Cell Disease: Optimizing Care Through all Stages of Life”
CME/CNE credits are available
Learn More and Register: HERE