Sick Cells and Avalere Health want to thank our Dialogue attendees for sharing so many interesting ideas which helped us create a Roadmap on how to advance care for individuals with SCD.

Read the Roadmap

Newsroom

We strive to bring you News You Can Use — all year long.
Here you’ll find our monthly newsletter, blog, and events calendar. You can also keep
up with Sick Cells in the media.

Latest Media Mentions

View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.

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Science Might Finally Have a Fix For This Rare Blood Disorder

Ashley Valentine of Sick Cells spoke with OZY Media about sickle cell disease treatments and her hopes for the future of people living with sickle cell.

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Readout from The First Lady’s Roundtable on Improving the Lives of Americans Living with Sickle Cell Disease

First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.

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Sickle Cell advocate unexpectedly dies. Family to hold blood drive in his honor. “We have a lot of work to do for his legacy.”

The Chicago Tribune released an article regarding the loss of Sick Cells’ co-founder, Marqus Valentine. 

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The National Black Caucus of State Legislators

Ashley is a Co-Founder and President of Sick Cells nonprofit. She is the youngest sibling of her family.  Her older brother and Co-Founder of Sick Cells, Marqus Valentine, has sickle cell anemia, Hgb ss.

Latest Blogs

Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.

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A Community of Unique Individuals Needs Options

This year, Sick Cells is celebrating Black History Month with its #YourBlackHistory series which aims to highlight the voices of Black sickle cell warriors, caregivers and advocates who are making history today through their advocacy work, commitment to service, and devotion to improving the lives of those in the community.

As part of the series, we’re spotlighting Mapillar Dahn — president and founder of MTS Sickle Cell Foundation, Inc. and the mother of three children who live with sickle cell — and her perspective on the sickle cell disease community’s unique needs.

 

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Your Black History Month

The goal of Your Black History Month is to amplify the voices of Black sickle cell warriors, caregivers and advocates who are making history, today, through their advocacy work, commitment to service and devotion to improving the lives of those in the community. Throughout the month of February, Sick Cells will highlight five SCD advocates and their unique stories. #YourBlackHistoryMonth

Sickle Cell News

Stay informed. Whether it be news on treatments, laws or activism, sickle cell
information is always churning.

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Proclamation on National Sickle Cell Disease Awareness Month, 2020

The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.

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The First Lady’s Improving the Lives of Americans Living with Sickle Cell Disease Roundtable

First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.

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The 4th Black Health Matters Summit: Proactive Black Health in the Age of COVID-19

Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.

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