June Newsletter (2024)
This month, Sick Cells highlights why raising funds = raising awareness as we kick off our Summer Bash Fundraisers for Sickle Cell.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Authority Magazine, a Medium publication, spoke with Ashley Valentine about her life and work in the sickle cell community.
The New York Times talks to the sickle cell community about upcoming gene therapies.
Press Release regarding Sick Cells and Innovation and Value Initiative (IVI)’s joint white paper published October 20, 2022
Sick Cells President and Co-Founder, Ashley Valentine, spoke with The New Yorker.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
Sick Cells had the opportunity to sit down with Dennis McCullen to share memories of his friend George Gaddy. This conversation is part of Remembrance Week, a time dedicated to honoring the sickle cell warriors who have passed away and sharing stories to keep their memories alive.
This month, Sick Cells sat down with Kevin Wake to hear about the first Drug Utilization Review Board (DURB) meeting in Kansas to review the newly approved gene therapies, Casgevy (Vertex) and Lyfgenia (bluebird bio) for the treatment of Sickle Cell Disease.
See an event you’re interested in? Join us.
October 5, 2024
5:00 pm - 10:00 pm
Date: October 5| 6 pm – 10 pm
Location: Crowne Plaza Louisville
830 Phillips Lane, Louisville, KY 40209
Description: This year will be no less amazing than our previous years’ galas! We can’t wait to see everyone and celebrate our warriors. We’re planning lots of fun!
This event is for those 21 years old and older and is Black Tie Optional
Questions: 502-338-0102 \ info@thescakky.org
November 23, 2024
7:00 pm - 11:30 pm
Hosted by Sickle Cell Foundation of Georgia, Inc. (SCFG), the 2024 Black Tie Gala is an elegant evening of dancing and speakers.
Learn More and Register: HERE