This month, read on to catch a Minute with Marqus (and Chewy!), this month’s highlights, and some links we think you’ll like.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
ISPOR’s Value and Outcomes Spotlight Magazine featured Sick Cells’ President and Co-founder, Ashley Valentine. See the article on page 29.
Sick Cells Co-founder and President is included in PhRMA’s announcement as a speaker for their Fall webinar and workshop series.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
Sick Cells caught up in the new year with two Sick Cells Ambassadors to reflect on their experience giving public comments at a 2021 Wisconsin Drug Utilization Review board meeting.
Sick Cells spoke with Whitney Carter, a SCD Warrior, about her mental health journey over the course of the pandemic. The effects of the COVID-19 pandemic have been felt everywhere. It has changed the way sickle cell disease Warriors are able to get care in the clinical setting, but it has also brought opportunities to the SCD community.
See an event you’re interested in? Join us.
June 9, 2022
12:00 pm - 1:00 pm
The P.O.W.E.R ECHO Project Community Health Worker Training is designed to assist community health workers with resources and education, in order to strengthen their efforts in providing support services for sickle cell disease (SCD) patients. This series hosts monthly virtual sessions.
This month, the topic is “Undocumented Individuals with SCD” Presented by Danina Battle, CHW, Sickle Cell Foundation of Georgia, Inc.
June 16 - 18, 2022
The Global Sickle Cell Disease Network will host the 4th Global Congress on Sickle Cell Disease as a hybrid event with attendance online and in-person in Paris, France. The Congress will bring together sickle cell diseases (SCD) stakeholders from various sectors, including clinicians, scientists, patients, health policymakers, and advocacy groups to catalyze discussion around the achievements and challenges in the diagnosis, treatment, and care of people living with SCD globally, as well as the prospects for further progress.
Learn More: HERE