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Newsroom

We strive to bring you News You Can Use — all year long.
Here you’ll find our monthly newsletter, blog, and events calendar. You can also keep
up with Sick Cells in the media.

Latest Media Mentions

View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.

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Readout from The First Lady’s Roundtable on Improving the Lives of Americans Living with Sickle Cell Disease

First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.

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Sickle Cell advocate unexpectedly dies. Family to hold blood drive in his honor. “We have a lot of work to do for his legacy.”

The Chicago Tribune released an article regarding the loss of Sick Cells’ co-founder, Marqus Valentine. 

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The National Black Caucus of State Legislators

Ashley is a Co-Founder and President of Sick Cells nonprofit. She is the youngest sibling of her family.  Her older brother and Co-Founder of Sick Cells, Marqus Valentine, has sickle cell anemia, Hgb ss.

Latest Blogs

Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.

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SCD Treatments

A collection of information about the FDA approved sickle cell treatments Endari™, Oxbryta™ and Adakveo®.

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Donate Blood, Save a Life

The Valentine family is hosting a blood drive in Lisle, IL on Saturday — Marqus’ birthday. The donations will go to Marqus’ home hospital, where he received many blood transfusions. Many patients with sickle cell disease (SCD) rely on blood transfusions for treatment.

Sickle Cell News

Stay informed. Whether it be news on treatments, laws or activism, sickle cell
information is always churning.

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The First Lady’s Improving the Lives of Americans Living with Sickle Cell Disease Roundtable

First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.

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The 4th Black Health Matters Summit: Proactive Black Health in the Age of COVID-19

Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.

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Potential Oral DMT Showing Safety and Signs of Efficacy in Phase 1 Trial

FT-4202 — an investigational treatment for sickle cell disease (SCD) — has a favorable safety profile and the expected biological effects, providing preliminary support of efficacy, according to data from an ongoing Phase 1 clinical trial.

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