October Newsletter (2023)
This month we have a Minute With Marqus featuring Fran Valentine, thank the SCDAA for a wonderful event, and share information about the FDA Advisory Committee meeting.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Authority Magazine, a Medium publication, spoke with Ashley Valentine about her life and work in the sickle cell community.
The New York Times talks to the sickle cell community about upcoming gene therapies.
Press Release regarding Sick Cells and Innovation and Value Initiative (IVI)’s joint white paper published October 20, 2022
Sick Cells President and Co-Founder, Ashley Valentine, spoke with The New Yorker.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
In this blog, Sick Cells worked with the Kidney Cancer Association (KCA) and CJ Johnson Foundation to discuss the connection between Sickle Cell Trait (SCT), exercise, and a rare type of kidney cancer.
In 2022, Sick Cells conducted an analysis of existing state legislation specific to sickle cell disease. We also provide monthly updates on notable state bills. This blog highlights some of the state bills we have been covering and why they are important.
See an event you’re interested in? Join us.
December 9 - 12, 2023
All Day
The 65th ASH Annual Meeting and Exposition is the premier event in classical and malignant hematology.
Learn more and Register: HERE
February 25 - 28, 2024
All Day
Save the date! Every Life Foundation’s 2024 Rare Disease Week on Capital Hill will be February 25-28.
More info coming soon