View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Ashley Valentine of Sick Cells spoke with OZY Media about sickle cell disease treatments and her hopes for the future of people living with sickle cell.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
The Chicago Tribune released an article regarding the loss of Sick Cells’ co-founder, Marqus Valentine.
Ashley is a Co-Founder and President of Sick Cells nonprofit. She is the youngest sibling of her family. Her older brother and Co-Founder of Sick Cells, Marqus Valentine, has sickle cell anemia, Hgb ss.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
Since the COVID-19 vaccine has been approved for sickle cell warriors, there have been a lot of questions about the vaccine. Sick Cells sat down virtually with two sickle cell warriors who received both doses of the vaccine to talk about their experience.
Since March 2020, the world has been coping with a “new normal” of the COVID-19 pandemic. Hear what advocate and intern Rafia has to say about life full of changing guidelines on masking, social distancing, and quarantine.
See an event you’re interested in? Join us.
August 31, 2021
12:00 pm - 4:00 pm
Hosted by Sick Cells, the Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care. We will share ideas on the latest strategies to measure value, improve patient outcomes, and better navigate healthcare costs.
September 16 - 18, 2021
All Day
Cayenne Wellness Center and Axis Advocacy’s Annual Sickle Cell Disease Educational Seminar is a three-day seminar designed to address the multi-factorial aspects of sickle cell disease and sickle cell trait awareness and education. The 13th Annual Virtual Sickle Cell Disease Educational Seminar is designed for nurses, health care professionals, providers, educators, social workers, students, individuals with sickle cell disease and their families and the community at large.
The purpose of this educational activity is to strengthen the participant’s knowledge base about SCD and SCT through lecture, discussion and sharing of current and future treatment regimens. In addition to presentations on the pathophysiology, complications, management, and treatment of sickle cell disease, the seminar will present the latest scientific and clinical information related to the disease. CME Credits available.
Learn More: HERE
Register: HERE
Stay informed. Whether it be news on treatments, laws or activism, sickle cell
information is always churning.
The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.
