View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Ashley Valentine of Sick Cells spoke with OZY Media about sickle cell disease treatments and her hopes for the future of people living with sickle cell.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
The Chicago Tribune released an article regarding the loss of Sick Cells’ co-founder, Marqus Valentine.
Ashley is a Co-Founder and President of Sick Cells nonprofit. She is the youngest sibling of her family. Her older brother and Co-Founder of Sick Cells, Marqus Valentine, has sickle cell anemia, Hgb ss.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
This year, Sick Cells is celebrating Black History Month with its #YourBlackHistory series which aims to highlight the voices of Black sickle cell warriors, caregivers and advocates who are making history today through their advocacy work, commitment to service, and devotion to improving the lives of those in the community.
As part of the series, we’re spotlighting Mapillar Dahn — president and founder of MTS Sickle Cell Foundation, Inc. and the mother of three children who live with sickle cell — and her perspective on the sickle cell disease community’s unique needs.
The goal of Your Black History Month is to amplify the voices of Black sickle cell warriors, caregivers and advocates who are making history, today, through their advocacy work, commitment to service and devotion to improving the lives of those in the community. Throughout the month of February, Sick Cells will highlight five SCD advocates and their unique stories. #YourBlackHistoryMonth
See an event you’re interested in? Join us.
April 20 - 21, 2021
All Day
Sickle Cell Disease Association of America, Inc. (SCDAA) 2021 Annual Advocacy Day event is an opportunity for patients and caregivers affected by sickle cell disease to learn how to advocate for issues that are important to them. Participants will learn about the key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, and increased education and awareness for the sickle cell community throughout the country.
Learn More: HERE
Register for Day 1: HERE
Register for Day 2: HERE
April 21, 2021
2:00 pm - 3:00 pm
Brought to you by National Organization for Rare Disorders (NORD), this webinar looks to explain the process of transitioning from pediatric to adult care for people with rare diseases.
This webinar is intended for patients, caregivers, medical professionals, students and the general public.
Register: HERE
Stay informed. Whether it be news on treatments, laws or activism, sickle cell
information is always churning.
The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.
