March Newsletter (2024)
This month we share results from our Policy Forum and participation in the STAT Breakthrough Summit.
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Authority Magazine, a Medium publication, spoke with Ashley Valentine about her life and work in the sickle cell community.
The New York Times talks to the sickle cell community about upcoming gene therapies.
Press Release regarding Sick Cells and Innovation and Value Initiative (IVI)’s joint white paper published October 20, 2022
Sick Cells President and Co-Founder, Ashley Valentine, spoke with The New Yorker.
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
This month, Sick Cells sat down with Kevin Wake to hear about the first Drug Utilization Review Board (DURB) meeting in Kansas to review the newly approved gene therapies, Casgevy (Vertex) and Lyfgenia (bluebird bio) for the treatment of Sickle Cell Disease.
Sick Cells spoke with Rico, an SCD Warrior, founder of CoffeeRun and host of the annual CoffeRun 5k Sickle Cell Awareness Run.