July Newsletter (2022)
This month we celebrate our co-founder, Marqus, with our Celebration of Life Blood Drive, announce our Coverage for SCD Summit, and more!
View some of our most recent media mentions. We’re proud to be featured on local
and national levels, speaking about sickle cell disease.
Sick Cells President and Co-Founder, Ashley Valentine, spoke with The New Yorker.
ISPOR’s Value and Outcomes Spotlight Magazine featured Sick Cells’ President and Co-founder, Ashley Valentine. See the article on page 29.
Sick Cells Co-founder and President is included in PhRMA’s announcement as a speaker for their Fall webinar and workshop series.
The Chicago Defender published an article discussing how Sick Cells is an awardee of the GBT ACCEL Grant this year
Our community has a lot to say. Read up on some personal views and perspective
from Sick Cells’ members and the SCD community.
Alexis Lott is a creative, sickle cell warrior, and staunch advocate for blood donation. She runs her own business as a marketing consultant and women’s minister. Sick Cells chatted with Alexis to learn more about why she is so passionate about blood donation, especially among people of color, and how she gets the word out about her own sickle cell advocacy.
Sick Cells se sentó con Adrienne Shapiro, la quinta generación de madres en su familia que ha tenido un niño con la enfermedad de células falciformes (ECF), para discutir la importancia de vacunarse contra el COVID-19.
See an event you’re interested in? Join us.
August 8 - 19, 2022
All Day
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Legislators. Meetings with House Representatives will be in-person and meeting with Senators will be virtual. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars. No prior advocacy experience is necessary.
Learn More: HERE
Para Español: AQUÍ
Registration closes July 8, 2022. Register: HERE
August 31, 2022
12:00 pm - 4:00 pm
The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.
Learn More: HERE