This letter to Congress is requesting annual congressional hearings on the NASEM Report released 2020. It’s more important than ever to keep the momentum going.
Sick Cells has composed a letter to the Biden Administration with the help of the sickle cell community. This letter highlights the policy priorities that the Biden Administration can prioritize in order to improve the lives of the sickle cell community and all people living with sickle cell disease.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
Sick Cells and Avalere Health partnered to host a multi-stakeholder dialogue to discuss and identify barriers to accessing quality care. Through this dialogue, we have developed a strategic roadmap to advance the care and lives of people living with sickle cell.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
Sick Cells in collaboration with Advocate Velvet Brown-Watts has created a guide to help teach advocates how to take meaningful action at the state level. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to create their own 5-minute sickle cell story for use in approaching legislators and policy-makers. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to reach out to their legislators. Click the button to download the step-by-step guide.
Sick Cells has compiled a list of facts about sickle cell. Click this link to read or download the fact sheet.
A quick list of our patient-centered priorities for improving access to care for people living with sickle cell disease.
A tool to assist patients and advocates when preparing oral or written comments for Medicaid DUR Board meetings.
On August 31, 2020, in honor of Sickle Cell Awareness Month, the President made a proclamation. Click the link to read the full statement.
