On August 31, 2020, in honor of Sickle Cell Awareness Month, the President made a proclamation. Click the link to read the full statement.
Executive summary of the Human-Centered Design Report by health+ and the Office of Minority Health. Read the report here.
The Department of Health and Human Services (HHS), Office of Minority Health requests that the National Academies of Sciences, Engineering, and Medicine convene an ad hoc committee to develop a strategic plan and blueprint for addressing sickle cell disease (SCD) in the United States. Use this link to read the full report and blueprint they created.
The nonprofit Center for Open Data Enterprise (CODE) and the U.S. Department of Health and Human Services (HHS) Office of the Chief
Technology Officer (CTO) co-hosted a roundtable, in partnership with the HHS Office of the Assistant Secretary of Health (OASH). Click the link to read the Key Takeaway Report.
Research, stories, and fact sheets from Sickle Cell Disease Coalition for current patients, caregivers, and medical professionals.
Information from our partners at SCDAA listing ways to get involved with the sickle cell community through local orgs, events, and SCDAA chapters.
Hub for educational resources on SCD including fact sheets, workbooks, pamphlets and brochures.
These evidence-based guidelines of the American Society of Hematology are intended to support the SCD community in decisions about prevention, diagnosis, and treatment of SCD.
This free program offers families one-on-one support from a clinical trials specialist and resources to learn more about SCD clinical trials.
Government-created search engine to help you find current medical trials for SCD. Search by country, recruiting status, condition, or specific term.
Be The Match offers many free programs and resources to support patients, caregivers and families before, during and after blood or marrow transplant.
Government resource outlining symptoms of SCD and their treatments. Disponible en Español.