Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
Sick Cells in collaboration with Advocate Velvet Brown-Watts has created a guide to help teach advocates how to take meaningful action at the state level. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to create their own 5-minute sickle cell story for use in approaching legislators and policy-makers. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to reach out to their legislators. Click the button to download the step-by-step guide.
Sick Cells has compiled a list of facts about sickle cell. Click this link to read or download the fact sheet.
A quick list of our patient-centered priorities for improving access to care for people living with sickle cell disease.
A tool to assist patients and advocates when preparing oral or written comments for Medicaid DUR Board meetings.
On August 31, 2020, in honor of Sickle Cell Awareness Month, the President made a proclamation. Click the link to read the full statement.
Executive summary of the Human-Centered Design Report by health+ and the Office of Minority Health. Read the report here.
The Department of Health and Human Services (HHS), Office of Minority Health requests that the National Academies of Sciences, Engineering, and Medicine convene an ad hoc committee to develop a strategic plan and blueprint for addressing sickle cell disease (SCD) in the United States. Use this link to read the full report and blueprint they created.
The nonprofit Center for Open Data Enterprise (CODE) and the U.S. Department of Health and Human Services (HHS) Office of the Chief
Technology Officer (CTO) co-hosted a roundtable, in partnership with the HHS Office of the Assistant Secretary of Health (OASH). Click the link to read the Key Takeaway Report.
Research, stories, and fact sheets from Sickle Cell Disease Coalition for current patients, caregivers, and medical professionals.