Sick Cells documents the lives of people with SCD and their support systems. The purpose is to highlight the resilience of the community and complex challenges the community faces through the voice of the patient. The goal is to eliminate stigma by showing truths from the patients. Sick Cells documents in varies forms including photo series, video series, social media, and written form.
What We’ve Learned from Listening to the Community
- Increased need for data dissemination
- Increased need for sickle cell trait awareness
- Demonstrated need for community advocacy tools at the local and federal levels
- Increased diversity in SCD representation
- Opportunities to increase participation of family members as SCD advocates