Our Caregiver Resource page has information and resources to help and support caregivers in the SCD community. Check it out here:

Caregiver Resources

Policy & Legislation

The sickle cell community has historically been underrepresented
in policy and legislation.

Sick Cells is committed to educating the SCD community on policy advocacy
and incorporating the SCD voice into legislation. We partner with other sickle cell organizations and patient advocacy group to advocate for policies that allow people with SCD to access the high-quality, specialized care we need.

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October & November 2021

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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October 2021 Special Memo – Orphan Drug Tax Credit

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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September 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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August 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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July 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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June 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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May 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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2021 Congressional Hearing Request Letter

Sick Cells has composed a community sign-on letter to various leaders in the House, Senate, Energy & Commerce Committee, and Ways & Means Committee to request an annual oversight hearing on the 2020 NASEM report on sickle cell disease. Sick Cells is grateful to the almost 40 partner organizations that signed on to this effort and are dedicated to amplifying the message and joining us in this request.

While all recipient names are included in this final version, separate letters were addressed and distributed to the House, Senate, and Committees.

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April 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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January-March 2021 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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2021 Letter to the Biden Administration From the Sickle Cell Community

Sick Cells has composed a letter to the Biden Administration with the help of the sickle cell community. This letter highlights the policy priorities that the Biden Administration can prioritize in order to improve the lives of the sickle cell community and all people living with sickle cell disease. We look forward to working with the administration to transform health outcomes for sickle cell disease patients across the country.

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