Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.
Sick Cells has composed a community sign-on letter to various leaders in the House, Senate, Energy & Commerce Committee, and Ways & Means Committee to request an annual oversight hearing on the 2020 NASEM report on sickle cell disease. Sick Cells is grateful to the almost 40 partner organizations that signed on to this effort and are dedicated to amplifying the message and joining us in this request.
While all recipient names are included in this final version, separate letters were addressed and distributed to the House, Senate, and Committees.
Sick Cells has composed a letter to the Biden Administration with the help of the sickle cell community. This letter highlights the policy priorities that the Biden Administration can prioritize in order to improve the lives of the sickle cell community and all people living with sickle cell disease. We look forward to working with the administration to transform health outcomes for sickle cell disease patients across the country.
The U.S. Department of Health & Human Services calls for equity-focused resource allocation and distribution in light of the current Covid-19 pandemic and the current scarcity of resource allocation. Read the full letter here.
Sick Cells is partnering with Sickle Cell 101 to ask the members of the SCD community to reach out to their congressmen to request funding for sickle cell in the 2021 fiscal year. Click here for a full summary of this movement as well as all the resources and tools you need to take part in #FundSickleCell.