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Policy & Legislation

The sickle cell community has historically been underrepresented
in policy and legislation.

Sick Cells is committed to educating the SCD community on policy advocacy
and incorporating the SCD voice into legislation. We partner with other sickle cell organizations and patient advocacy group to advocate for policies that allow people with SCD to access the high-quality, specialized care we need.

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July 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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June 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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May 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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April 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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Comments on CDC Opioid Guidelines

Sick Cells submitted a letter to the CDC with our comments on the proposed 2022 CDC Opioid Prescription Guidelines.

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March 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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February 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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January 2022 Policy Memo

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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January 2022 – Special Issue

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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October & November 2021

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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October 2021 Special Memo – Orphan Drug Tax Credit

Sick Cells is publishing Memos to keep you up to date with our policy priorities and explain what we’ve been focusing on. Check back for updates as we keep up our efforts to improve the policies that make a difference for the SCD community.

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