First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
Part 4 will highlight what’s ahead for ICER’s review of SCD treatments. It is critically important that ICER get their assessment right. We will discuss ways to get involved and ensure your voice is heard during the next few months of the ICER review.
Part 3 will focus on some of the basics of health economics and terms used in value assessments. How much does sickle cell disease really cost? What is the burden on the individual and family? Patients will learn how they can get involved in these conversations about the cost of SCD.
Part 2 will provide an overview of pharmaceutic supply chain and the roles of varies stakeholders. How do patients receive their medicine, and who is receiving the profit? We will answer common questions about the cost of medicine.
Do you have questions about Medicaid cuts? Join Sick Cells’ Artistic Specialist as he breaks down the severe repercussions of cuts to Medicaid. Remember, call your Senators and say “No cuts to Medicaid. Vote no to ACHA. No to BCRA.” The GOP’s health care plan proposes to cut Medicaid by $834 billion over the course of 9 years.