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Advocacy Tools

Sick Cells empowers volunteer advocates with tools, tips, and other information to strengthen their engagement with elected officials, decision-makers, and other stakeholders. Check out our Advocacy Toolkits and State Advocacy Resources below.

Advocacy Toolkits Archive

Our Advocacy Toolkits include detailed steps, guidance and resources for individuals to develop and implement an advocacy strategy.  Toolkits can be applicable for all levels of advocacy. Our aim is to provide readers with ideas for creating their own SCD advocacy initiatives.

State Advocacy Resources

Use our interactive map to find advocacy resources to help your state and local advocacy efforts.

Alabama

Alabama added sickle cell testing to their newborn screening in 1987.


Please check back for updates as Sick Cells is currently working to collect prevalence data.

Alaska

In Alaska, there were 0 newborns with SCD in 2019, and 2 newborns with SCD in 2018 according to the Bloodspot Newborn Screening Program,


Please check back for updates as Sick Cells is currently working to collect more prevalence data.

Arizona

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Arkansas

Please check back for updates as Sick Cells is currently working to collect prevalence data.

California

California added sickle cell testing to their newborn screening program in 1990.


California had 69 babies born with SCD in 2019 and 64 babies born with SCD in 2018 according to the health department's Genetic Disease and Newborn Screening Program.
California has an average of 4,700 residents with SCD according to a CDC data collection program that ran from 2010-2016.

Colorado

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Connecticut

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Delaware

Please check back for updates as Sick Cells is currently working to collect prevalence data.

District of Columbia

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Florida

Florida added sickle cell testing to their newborn screenings in 1988.


In Florida, there were 149 babies born with SCD in 2019 and 212 babies born with SCD in 2018 according to the health department's Children's Medical Services' office
Please check back for updates as Sick Cells is currently working to collect more prevalence data.

Georgia

Georgia added sickle cell testing to their newborn screenings in 1998.


Georgia has approx 2,400 residents with SCD according to a CDC Data Collection Program from 2010-2015.
Please check back for updates as Sick Cells is currently working to collect more prevalence data.

Hawaii

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Idaho

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Illinois

Illinois added sickle cell testing to their newborn screenings in 1989.


Please check back for updates as Sick Cells is currently working to collect prevalence data.

Indiana

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Iowa

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Kansas

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Kentucky

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Louisiana

In Louisiana, there were 84 babies born with SCD in 2019 and 73 babies born with SCD in 2018 according to the Health Department's Genetic Disease Program.


Louisiana has 1,353 individuals with SCD according to the Health Department's Genetic Disease Program.

Maine

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Maryland

Maryland added sickle cell testing to their newborn screenings in 1985.


In Maryland from 2012-2016, 475 newborns were diagnosed with SCD; an average of 97 infants per year, according to the Health Department.
Please check back for updates as Sick Cells is currently working to collect more prevalence data.

Massachusetts

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Michigan

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Minnesota

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Mississippi

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Missouri

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Montana

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Nebraska

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Nevada

Please check back for updates as Sick Cells is currently working to collect prevalence data.

New Hampshire

Please check back for updates as Sick Cells is currently working to collect prevalence data.

New Jersey

Please check back for updates as Sick Cells is currently working to collect prevalence data.

New Mexico

Please check back for updates as Sick Cells is currently working to collect prevalence data.

New York

Please check back for updates as Sick Cells is currently working to collect prevalence data.

North Carolina

Please check back for updates as Sick Cells is currently working to collect prevalence data.

North Dakota

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Ohio

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Oklahoma

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Oregon

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Pennsylvania

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Rhode Island

Please check back for updates as Sick Cells is currently working to collect prevalence data.

South Carolina

Please check back for updates as Sick Cells is currently working to collect prevalence data.

South Dakota

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Tennessee

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Texas

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Utah

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Vermont

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Virginia

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Washington

Please check back for updates as Sick Cells is currently working to collect prevalence data.

West Virginia

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Wisconsin

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Wyoming

Please check back for updates as Sick Cells is currently working to collect prevalence data.

Drug Utilization Review (DUR) Board-Colorado

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Indiana

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Massachusetts

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Wyoming

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Wisconsin

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-West Virginia

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Washington

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Virginia

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Vermont

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Utah

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Texas

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

Drug Utilization Review (DUR) Board-Tennessee

When new medications come on the market, they must go through a review by the state to decide where it will be placed on the drug formulary for Medicaid. These reviews take place by Drug Utilization Review Boards (DUR Boards). Click this link to find meetings in your state.

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