Events Calendar

Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Legislators. Meetings with House Representatives will be in-person and meeting with Senators will be virtual. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars. No prior advocacy experience is necessary.

Learn More: HERE

Para Español: AQUÍ

Registration closes July 8, 2022.  Register: HERE

The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD).  This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.

Learn More: HERE