Mark your calendar!
Here’s where we keep tabs on sickle cell events happening across the country.
If you know of an event we should add, just let us know.
Here’s where we keep tabs on sickle cell events happening across the country.
If you know of an event we should add, just let us know.
August 8 - 19, 2022
All Day
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Legislators. Meetings with House Representatives will be in-person and meeting with Senators will be virtual. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars. No prior advocacy experience is necessary.
Learn More: HERE
Para Español: AQUÍ
Registration closes July 8, 2022. Register: HERE
August 31, 2022
12:00 pm - 4:00 pm
The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.
Learn More: HERE