Events Calendar

Hosted by The Sickle Cell Association of Texas Marc Thomas Foundation, Camp Next Level is a three-night, four-day intense transitional program for teens ages 15-19 with sickle cell disease. This event seeks to address the host of issues and concerns that come from underprepared transitions from pediatric to adult services.

This event will be fully virtual this year.

Learn more: HERE

Register: HERE

Global Genes and the EveryLife Foundation have partnered to host RARE on the Road events around the country, developing the next generation of advocacy leaders.

With feedback from the community, RARE on the Road 2021 will include one interactive webinar and three in-person meetings. While all parts of this event are geared toward empowering advocates to build their skill set, enhance their knowledge, engage in advocacy, and network with their local rare disease community, in-person events will focus on state-specific information based on their location.