Join us on August 31 for our 2022 Coverage for SCD Summit!

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Coverage for SCD Summit 2022

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♦  Save The Date for our 2022 Coverage for SCD Summit!  ♦

August 31, 2022

The Summit

The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD).  This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.

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Background

Sickle cell disease is a rare genetic disorder, affecting approximately 100,000 individuals in the U.S., and disproportionately affecting Black and Brown populations. Treatment advances are emerging, yet barriers to access contribute to underutilization. Racial inequities and health disparities add to poor health outcomes and gaps in access.

The Coverage for SCD Summit will highlight best practices for payer management of sickle cell disease. Information on the complications of sickle cell disease, advances in current treatment options, and strategies to address racial health disparities through coverage policy will be shared.

New This Year

New this year, the Coverage for SCD Summit will offer a continuing education (CE) session that provides pharmacists, managed care specialists, and physicians the knowledge and skills they need to enhance their professional competence. More information will be provided soon about this accreditation and continuing education program.

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Agenda

The full event brochure with speakers will be posted soon. Stay tuned for more information!

Summit Topics
  • Drivers of the High Cost of SCD  — With individual’s lifetime burden of SCD-attributable medical costs totalling $1.7 million, the cost of SCD is substantial. Educational sessions will highlight where individuals with SCD typically incur high healthcare costs, and how to reduce this burden on patients and payers. 
  • Challenges Impacting Patient Access  — Patients and caregivers will discuss their personal journeys and outline some of the top obstacles to treatment access and coverage. The session will share ways healthcare organizations can provide more convenient options and other patient services to improve coverage and access.
  • Strategies for Coverage Criteria Development  — Advances in disease-modifying treatments have led to the need for new models to assess real-world, value-added outcomes. Sessions will cover these new challenges and continuing adjustments to what criteria can be used to determine formulary management and utilization controls for available treatments.
  • Managed Care Research in Action — Managed care pharmacy is continuously changing for SCD, so it is important to explore and learn how SCD beneficiaries are being impacted. Attend an educational session on the latest managed care pharmacy research and learn what others are putting into practice.

Read our 2021 Convening Proceedings Report to catch up on the latest discussions and recommendations shared at last year’s Coverage for SCD Summit.

Registration

This event is virtual and registration is free. Click the button below to attend the Summit on Aug 31, 2022.

Who Should Attend?
  • Managed care organizations 
  • Pharmacy directors and managers
  • Private insurance plans
  • Government health programs
  • Employer groups
  • SCD providers and clinical care teams
  • Researchers
  • Pharmaceutical manufacturers
  • Patient groups and patient advocates
  • Policymakers

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Sponsors

Thank you to each and every sponsor for your contribution and commitment to improving access and coverage for SCD treatments and care.

Gold Level sponsors Logos, Vertex Pharmaceuticals Bronze level sponsor logos, Pfizer, Chiesi

Supporter Level sponsor logos, EveryLife Foundations, Bluebird Bio, Sangamo Therapeutics, Graphite Bio, Forma Therapeutics, Biotechnology Innovation Organization

Want to learn more about last year’s summit? You can find our previous agenda, speaker list and more HERE

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