February 2022 Policy Memo
This month’s highlights include updates from a listening session with the CMS Administrator, the release of our 2022 federal priorities, and more.
This month’s highlights include updates from a listening session with the CMS Administrator, the release of our 2022 federal priorities, and more.
This month’s highlights include information on our policy workgroups for the year and three sign-on letters we supported.
SPECIAL MEMO: The purpose of this memo is to provide updates about the 2022 Sick Cells Ambassador Policy Forum.
Highlights from these two months include updates from a Wisconsin Medicaid coverage meeting and Ambassador Priority Topic Meetings focused on state legislation and working with the media.
SPECIAL MEMO: The purpose of this memo is to outline Sick Cells’ opposition to the proposed cuts to the Orphan Drug Tax Credit included in the Build Back Better Act of 2021.
This month’s highlights include Medicaid coverage meetings in Minnesota and Pennsylvania, three sign-on letters we supported, and an Ambassador Priority Topic meeting about state legislation.
This month’s highlights include follow-ups from Sick Cells’ Congressional Hearing Request and one sign-on letter we supported.
This month’s highlights include updates from Sick Cells’ ongoing Hill meetings, notes on our participation in external policy meetings, and one sign-on letter we supported.
This month’s highlights include the release of the Sick Cells-led Congressional Hearing Request, updates on a Wisconsin Medicaid coverage meeting, and two sign-on letters we supported.
This month’s updates include a Sick Cells-coordinated Hill meeting in New York, an Ambassador Priority Topic Meeting on data advocacy, and one sign-on letter we supported.
Sick Cells has composed a community sign-on letter to various leaders in the House, Senate, Energy & Commerce Committee, and Ways & Means Committee to request an annual oversight hearing on the 2020 NASEM report on sickle cell disease. Sick Cells is grateful to the almost 40 partner organizations that signed on to this effort and are dedicated to amplifying the message and joining us in this request.
While all recipient names are included in this final version, separate letters were addressed and distributed to the House, Senate, and Committees.
This month’s highlights include Sick Cells resources used in SCDAA Advocacy Days, updates from Illinois & Texas Medicaid coverage meetings, an Ambassador Priority Topic Meeting with CAPT David Wong (OMH) as a guest speaker, and three sign-on letters we supported.