Policy & Legislation

The sickle cell community has historically been underrepresented
in policy and legislation.

Sick Cells is committed to educating the SCD community on policy advocacy
and incorporating the SCD voice into legislation. We partner with other sickle cell organizations and patient advocacy group to advocate for policies that allow people with SCD to access the high-quality, specialized care we need.

Read More

Comments on CDC Opioid Guidelines

Sick Cells submitted a letter to the CDC with our comments on the proposed 2022 CDC Opioid Prescription Guidelines.

Read More

March 2022 Policy Memo

This month’s highlights include Sick Cells’ annual Ambassador Policy Forum & Hill Day, the release of our new Medicaid Engagement White Paper, and updates from a Florida Medicaid coverage meeting.

Read More

February 2022 Policy Memo

This month’s highlights include updates from a listening session with the CMS Administrator, the release of our 2022 federal priorities, and more.

Read More

January 2022 Policy Memo

This month’s highlights include information on our policy workgroups for the year and three sign-on letters we supported.

Read More

January 2022 – Special Issue

SPECIAL MEMO: The purpose of this memo is to provide updates about the 2022 Sick Cells Ambassador Policy Forum.

Read More

October & November 2021

Highlights from these two months include updates from a Wisconsin Medicaid coverage meeting and Ambassador Priority Topic Meetings focused on state legislation and working with the media.

Read More

October 2021 Special Memo – Orphan Drug Tax Credit

SPECIAL MEMO: The purpose of this memo is to outline Sick Cells’ opposition to the proposed cuts to the Orphan Drug Tax Credit included in the Build Back Better Act of 2021.

Read More

September 2021 Policy Memo

This month’s highlights include Medicaid coverage meetings in Minnesota and Pennsylvania, three sign-on letters we supported, and an Ambassador Priority Topic meeting about state legislation.

Read More

August 2021 Policy Memo

This month’s highlights include follow-ups from Sick Cells’ Congressional Hearing Request and one sign-on letter we supported.

Read More

July 2021 Policy Memo

This month’s highlights include updates from Sick Cells’ ongoing Hill meetings, notes on our participation in external policy meetings, and one sign-on letter we supported.

Read More

June 2021 Policy Memo

This month’s highlights include the release of the Sick Cells-led Congressional Hearing Request, updates on a Wisconsin Medicaid coverage meeting, and two sign-on letters we supported.

Stay in the Know

Sign up for our newsletter!