Ambassadors Archive - Page 2 of 5

Femi

I want to see us move forward. It is possible to live a long and healthy life free of systemic racism and other real problems that affect those living with SCD. We deserve to be healthy. We are many, and we have power. It is our responsibility to support and love one another through the change we want to see. A cure is around the corner, but only as we are active participants in demanding better. I advocate for a healthier us.

Heather

I advocate for sickle cell because equitable care should be provided to all. I advocate to change the bias and narrative toward people living with sickle cell from the inside out. As a patient, I believe that the tools for understanding change come from within the experiences I have lived.

Sidney

Being a caregiver and sc warrior, I want to make sickle cell famous again and bring the impactful change we want to see.

Dr Raquel

I have always had the tenacity to do what is suitable and equitable for individuals. My mission as a passionate leader is to seek that a person gets the best possible treatment, diversity, and Equity in healthcare.

Levell

I advocate for Sickle Cell Anemia because growing up in Idaho I was told a lot of can'ts and I want to show fellow warriors what we can do! I have experienced what it is like to have inadequate healthcare and the trauma that causes to patients and families. I want to create a more compassionate and fair healthcare system that can meet the needs of the Sickle Cell Community.

Andressa

I advocate because I believe that my voice matters, and that I’m able to guide, change, and positively impact the lives of those who are living with Sickle Cell Disease.

Dr Simone

I advocate because as a physician with Sickle Cell disease, I know how to advocate for myself.
But you shouldn’t have to be a doctor to get good care. I want to make sure that transformative and quality care is available to every patient living with Sickle Cell disease.

Brittney

Why I advocate: I wanted to become an ambassador for sickle cell because there's always more to learn about... And so that I could lead more in the sickle network, and community. And also trying to grow more in this community although I'm a sickle warrior, I always feel as though I need to learn more. I always hear other people knowing more than me and I always felt like I have advocated when I was younger but as sickle cell meds grow and other things I want to see what else I need to learn about... To help

Tina

Why I advocate: As a Sickle Cell Warrior, to give others a sense of HOPE, so they don’t have to suffer in silence. As a school nurse, I advocate for children with chronic conditions to reach their full potential in self-care health management, bring awareness to others, and having knowledge to receive high-quality care to live. We have the responsibility to take care of our Mind, Body, and Spirit to have a healthier life.

Latavia

Why I advocate: My mom has told me since I was a child that I had the trait and to make sure anyone I choose to have a baby with didn’t have the trait. Growing up in Jamaica, my significant other didn’t have access to genetic testing, so he didn’t know he had the trait. We were told two weeks after our daughter was born that she had SCD and were completely devastated. I became an advocate for a lot of reasons but mostly because I know advocacy can change things. I am going to do my part to make sure my daughter has a voice in this fight.

Yasmeen

Hello! I’m Yasmeen, a fellow Sickle Cell Warrior and Spiritual Advisor! I reside in Alabama and have been advocating for Sickle Cell for most of my life while also assisting people with spiritual guidance.

Tabitha

I advocate so the next generation of sickle cells warriors will be better educated and more prepared. I want them to know they are not alone in this fight. My goal is to teach them how to learn their crisis triggers, maintain an active and healthy lifestyle, and know how to treat a crisis without heavy pain medications.