Sick Cells has composed a community sign-on letter to various leaders in the House, Senate, Energy & Commerce Committee, and Ways & Means Committee to request an annual oversight hearing on the 2020 NASEM report on sickle cell disease. Sick Cells is grateful to the almost 40 partner organizations that signed on to this effort and are dedicated to amplifying the message and joining us in this request.
While all recipient names are included in this final version below, separate letters were addressed and distributed to the House, Senate, and Committees.
Senators Cory Booker and Tim Scott continue to champion sickle cell disease by asking their colleagues to assist them in appropriating funding for sickle cell programs in fiscal year 2022.
In September of 2020, the Centers for Medicare & Medicaid Services (CMS) released an infographic summarizing their data on beneficiaries with Sickle Cell Disease.
Sick Cells has composed a letter to the Biden Administration with the help of the sickle cell community. This letter highlights the policy priorities that the Biden Administration can prioritize in order to improve the lives of the sickle cell community and all people living with sickle cell disease.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
Sick Cells and Avalere Health partnered to host a multi-stakeholder dialogue to discuss and identify barriers to accessing quality care. Through this dialogue, we have developed a strategic roadmap to advance the care and lives of people living with sickle cell.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
Sick Cells in collaboration with Advocate Velvet Brown-Watts has created a guide to help teach advocates how to take meaningful action at the state level. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to create their own 5-minute sickle cell story for use in approaching legislators and policy-makers. Click the button to download the step-by-step guide.
Sick Cells has created a guide to help teach advocates how to reach out to their legislators. Click the button to download the step-by-step guide.
Sick Cells has compiled a list of facts about sickle cell. Click this link to read or download the fact sheet.
