“So my son is 24 years old and he was born with Sickle cell disease, SS type Sickle cell disease. He’s been having a hard battle with it. His 25th birthday is in November and the following day he’s having kind of like a hip replacement because of the Sickle cell disease has ran havoc in that area of his hips. […]
In regards to his medical care
Things are changing. It used to be when he was going to Texas Children’s that was like the awesomest place to be as far as care. Then when he transitioned as an adult, when you turn 18, you have to start going to the adult hospitals. That was tough because when you’d to get to the ER, they didn’t follow the same protocol that Texas Children’s did. So there was a lot just to even get medicated, pain medicine. Because they would think you are drug seekers. So you would lay there and he would be suffering and wouldn’t be getting the proper dose. But now Memorial Herman has a protocol that they follow with the medical center location. Not all [hospitals] do it. Where they follow a protocol for patients who come in with Sickle cell so they can get treated properly.”
–Treva, Mother of a SCD Warrior
