Ambassadors Archive - Page 4 of 5

Nola

I advocate to raise awareness and educate others about what is far too often an invisible disease. SCD is a chronic condition but it doesn’t mean that individuals living with the disease can not accomplish great things! Everyone, including SCD patients, deserves to be treated with respect and dignity when seeking medical care. I hope through my advocacy work to shine a light on medical disparities in care and bring about indelible change.

Demitrea

I advocate for my daughter, a Sickle Cell Warrior, that is full of love and light. I advocate for the voiceless and ensure their rights are protected. I advocate for justice and equity, giving all people a fair and respectful quality of life. I advocate to amplify the views of those that may not have the ability to share their story.

Whitney

I advocate because as I learn, I want others to be aware of the what, where, when, and how they are granted opportunities they may feel opted them out. We are in this together and we have to educate one another.

Rae

I advocate as a means to increase sickle cell education and awareness, elevate the voices of the community and improve healthcare outcomes that lead to sustainable increases in quantity and quality of life

Dana

I advocate to redefine the standard & stereotype of what living with Sickle Cell SS can be. To be a voice of inspiration that SS didn’t happen TO US, it happened FOR US. My life purpose and greatest fulfillment has come in spite of sickle cell and I will fight so that others can receive adequate treatment and lead purpose-led lives they design and not default to.

Dima

I advocate for SCD because it's essential to educate the masses about sickle cell disease. It's also important to be an example to other sickle cell warriors. Life should not be defined by sickle cell or any chronic illness. Despite our disability, we ALL have the ABILITY to dare, dance, and dream through the pain.

Tanika

I am a parent and caregiver to my son with sickle cell. I advocate for him and for myself because I also have sickle cell.

Golda

I advocate for Sickle Cell Disease because it has been neglected for too long--both nationally and globally. Health equity, particularly non-discrimination and equality, is a basic human right and I look forward to playing an active role in pushing SCD to the forefront of the American Public Health agenda.

Teonna

Why I Advocate: I remain optimistic and grateful for life. I work towards my goals and hope to affect real change in the sickle cell community. I am focused on not just living with sickle cell but thriving with it

Simone

I advocate for the warriors that feel as if no one cares. Nothing’s worse than being vulnerable, in dire need of medical attention and being shunted aside. I have experienced this in more ways than one, and it motivates me to keep fighting for Sickle Cell patients so we won’t be forgotten within our medical system.

Nikeyia

I advocate for sickle cell because I am a Sickle Cell Warrior! I have lost loved ones from this disease which makes me fight even harder to let the world know about what Sickle Cell truly is. I was born with the disease and I have it, it does not have me! My goal is to MAKE SICKLE CELL POPULAR!!

Tricia

I Advocate because a close friend passed away from complications of SCD. After he passed I wondered, "How do I keep his legacy alive?" His legacy deserves more than an ode to Sickle Cell. It deserves a better understanding of the disease, advocacy for SCD, and the people who live with it daily for their stories deserve to be told.