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Sickle Cell Resources

This page contains links to all the information you need to know about sickle cell disease, whether you’re new to the community or are a lifelong warrior. Our partner agencies provide up-to-date research, statistics, educational materials, and stories about sickle cell disease (SCD). Feel free to scroll through all available resources or search by category.

SCD Education and Resources

Clinical Trial Specialist Support

This free program offers families one-on-one support from a clinical trials specialist and resources to learn more about SCD clinical trials.

Clinical Trials

Government-created search engine to help you find current medical trials for SCD. Search by country, recruiting status, condition, or specific term.

SCD and Transplant Resources

Be The Match offers many free programs and resources to support patients, caregivers and families before, during and after blood or marrow transplant.

Complications & Treatment Information

Government resource outlining symptoms of SCD and their treatments. Disponible en Español.

Approved Treatments

A news organization that provides information on all treatments for SCD to use when discussing treatment options with your physician or other qualified health provider.

Data & Statistics on Sickle Cell Disease

Government resources for current statistics, research, and more. Disponible en Español.

Educational Resources

Information compiled by our friends at Sickle Cell 101 that outlines all the basics of SCD. Contains links to more resources.

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