Sharing your story with the media is becoming a common opportunity for many SCD Warriors. However, you want to be prepared and ready to adapt. This toolkit will help you think through the best way to break your story.
Facing severe pain that requires immediate treatment is an unfortunate reality for many individuals with sickle cell disease (SCD). This toolkit includes resources and strategies to improve care for SCD warriors in the emergency room (ER).
This toolkit provides resources to assist mentees and mentors in making the most of the mentoring relationship.
Use this worksheet as a guide for preparing your story to share with legislators.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
This toolkit provides tips for virtual meetings with legislators.
The Centers for Disease Control and Prevention ( CDC) released the Steps to Better Health Toolkit to help individuals living with SCD manage their health. This collection of tools and resources provides evidence-based guidance on caring for common complications experienced by individuals living with SCD.
Authors Yasmeen Long and Esther Krofah of FasterCures at The Miliken Institute have written an action plan to address diversity across clinical trials and biomedical research.
This guide helps sickle cell warriors bring intentionality to their diet & nutrition in order to help support the body in its healing
This flyer helps provides some of the key information about COVID-19 Vaccination for members of the SCD Community.
Developed by Dr. Marjorie Dejoie-Brewer, this explanation of the Wellness Fundamentals shows a patient-centered approach to better health.
A toolkit to help sickle cell advocates leverage data to drive their advocacy work.
