2026 SCD Policy Forum

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Details

Sick Cells and the Sickle Cell Community Consortium are hosting the 2026 Sickle Cell Disease (SCD) Policy Forum on March 17-18, 2026.

The SCD Policy Forum is a 2-day, hands-on event designed to inform sickle cell advocates on critical SCD policy priorities, train advocates on how to speak with their federal representatives to share what matters to the community, and match advocates with their federal representatives in a live Virtual Hill Day session.

Day 1 (March 17) includes: 

  • Up-to-date education on this year’s sickle cell disease federal priorities 
  • Expert speakers on important policy topics 
  • Workshops and team breakout sessions to practice elevator pitches

Day 2 (March 18) includes: 

  • An exciting Virtual Hill Day
  • Meetings with federal legislators and educating them on SCD issues and policy recommendations

Scan the QR code above or click the button below to be notified when registration opens

Previous Successes

Read about the successes from our previous years: