2026 SCD Policy Forum

Details

Sick Cells is hosting the 2026 Sickle Cell Disease (SCD) Policy Forum, ‘Voices to Action’ on March 17-18, 2026.

“Voices to Action” is more than just a theme, it’s a call. The SCD Policy Forum brings together Warriors, caregivers, clinicians, and advocates to turn lived experience into legislative impact. From powerful stories to purposeful action, we elevate voices, shape policy priorities, and meet directly with lawmakers to drive meaningful change.

The SCD Policy Forum is a 2-day, hands-on event designed to inform sickle cell advocates on critical SCD policy priorities, train advocates on how to speak with their federal representatives to share what matters to the community, and match advocates with their federal representatives in a live Virtual Hill Day session.

Day 1 (March 17) includes: 

• Up-to-date education on this year’s sickle cell disease federal priorities 
• Expert speakers on important policy topics 
• Workshops and team breakout sessions to practice elevator pitches

Day 2 (March 18) includes: 

• An exciting Virtual Hill Day
• Meetings with federal legislators and educating them on SCD issues and policy recommendations

Register

Registration is now open! Registration is free for SCD community members. Click the button below to register.

Check back soon for more details including Agenda, Speakers, and more!

Sponsors

Thank you to the sponsors of the 2026 SCD Policy Forum.