Media Mentions

We work hard to elevate the voices of sickle cell disease every single day.
Each time our message is shared in the media, we celebrate those wins for all of us as a community.
Check below for some of our media highlights – and come back regularly for updates!

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15 individuals recognized for their commitment to “caring for life” through blood donation and volunteerism

Fresenius Kabi announced today it has inducted 15 people into the 2019 Fresenius Kabi Blood Donation Hall of Fame.

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Blood Donations Enable Sickle Cell Patient to Advocate for Change

Living with sickle cell disease and advocating for others with the disease can pose challenges, but blood donations help provide the strength he needs to continue to make a difference.

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U.S. Pain Foundation, Inc: Marqus V.’s Chronic Pain Story

In honor of Pain Awareness Month, U.S. Pain Foundation is sharing a video story from a real person with pain each day during September.

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2019 Red Cross Blood Services Heroes

Ashley and Marqus were named the 2019 Blood Services Heroes from the American Red Cross.

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Seeing Sickle Cell as a Blood Disease

When Marqus asked the nurse at the new hospital for a patient-controlled analgesia pump—a device that allows patients to self-administer pain medication without overdoing it—she refused his request.

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How Misperceptions Can Create Barriers to Care (Podcast)

Sickle cell disease is the most common inherited blood disorder in the United States. People with the condition have sickle-shaped red blood cells and these misshaped cells can block the flow of blood and oxygen to organs throughout the body. These blockages can cause severe pain, organ damage, and strokes.

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Global Genes Rare Leader Feature

Ashley featured as a Global Genes Rare Leader.

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Great Chicago Blood Drive: The importance of donating blood

Marqus Featured on ABC with Dr. Mack.

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Siblings Marqus and Ashley Valentine tell stories of those with sickle cell disease

Chicago ABC segment on Sick Cells and blood donation.

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Sickle Cell awareness segment on Fox

Marqus appeared on Fox 32 for a segment during Sickle Cell Awareness Month.

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Fighting Sickle Cell Disease with Musical BEATS Program at University Hospitals

Sam Rodgers-Melnick, Music Therapist for University Hospitals in Washington, DC shares his passion for music with sickle cell patients to help them cope with pain, anxiety, and memorizing important health messages from nurses.

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