We’re not faking it. Sometimes I could walk maybe 50 yards, and I’m exhausted or I don’t have the energy or I’m really hurting. Just because I’m smiling doesn’t mean I’m not in pain. I don’t want to be around people. It’s not because I want to be anti-social. I just don’t have the energy, and I don’t want to be bothered.
It’s pretty hard, but with him seeing what I’ve been going through since 2004 and fighting and fighting and going from this doctor to that doctor. He’s been a real big support because he understands when I’m tired. When I’m in pain. I don’t have the energy, but it’s hard for 10 year olds to really understand when mom’s not really going to football games anymore, or I can’t put the AC on in the house because she gets too cold.
I have a very aggressive trait. I’m in the hospital 6 months out of the year with full blown attacks. I get ignored every time I go. I’m allergic to morphine now. My first neurologist stopped me from taking medication because I was a risk of organ failure.
