Ambassadors Archive - Page 5 of 5

Tanya

I advocate for SCD to continue my brother’s legacy. My brother at the age of 23 years old passed away from the disease. My mission is to research and educate others on how to help a person who is born with HB SS. We are warriors who are on a journey to improve the quality of life for anyone who suffers from this disease. I am a Sickle Cell Warrior.

Crystal

I advocate for SCD because of my son who was diagnosed at birth with the disease. I also want to help improve the quality of care for sickle cell warriors and break the stigma behind sickle cell.

Tristan

I advocate for every warrior, present & future. Until we have our cure, know I can't stop and won't stop advocating.

Cory

Why I Advocate: Advocacy is more than support, It’s a lifestyle radiating change!

Kristyl

I advocate for sickle cell because it’s time to bring a voice to the voiceless. Many warriors do not have supportive families to help them fight this disease. Therefore, it’s vital that there are other support structures in place so warriors don’t fall through the cracks.

Terrance

Why I Advocate: To give information on Sickle Cell Disease and share knowledge to obtain and give support.

Arelys

Why I Advocate: This illness is not me. It may be a part of my story, but it will never be strong enough to define me. Bringing awareness to sickle cell is so important to me because many Hispanics (Afro-Latino) like my parents don’t realize they carry the trait. I want to help educate the Latin community on this disease and bring some sort of hope to the younger sickle cell warriors that are in similar situations.

Sarai

Why I Advocate: I like to give back to the children and youth, to ensure they have a good opportunity, to make sure they have the best quality care, and the best education about sickle cell, and transition.