Sep 09 2025
Washington, D.C. — Sick Cells, a national nonprofit dedicated to amplifying the voices of people living with sickle cell disease (SCD), proudly supports the introduction of the Sickle Cell Disease Comprehensive Care Act in the U.S. House of Representatives, introduced by Representatives Danny Davis (D-IL) and Neal Dunn (R-FL). In the Senate, Senators Cory Booker (D-NJ) and Tim Scott (R-SC) introduced the companion bill earlier this year, S. 721.
The legislation will improve access to high-quality, coordinated care for people living with SCD by allowing states to establish a Medicaid Health Home with sickle cell disease as the single qualifying condition. This proven model of care has reduced hospitalizations, cut costs, and improved the quality of life for individuals with complex medical needs.
Nearly 100,000 Americans live with SCD, and approximately half rely on Medicaid for their care. Too many face fragmented and inconsistent treatment, leading to preventable complications and high rates of emergency department use. By investing in coordinated outpatient care, the Act offers an evidence-based solution that will improve outcomes while reducing unnecessary costs to the healthcare system.
“The Sickle Cell Disease Comprehensive Care Act moves sickle cell care from fragmented crisis response to coordinated, whole-person care, a long overdue shift that saves lives and restores dignity.” – Maia Z. Laing, Chief Policy Officer, Sick Cells.
As we recognize Sickle Cell Disease Awareness Month, this legislation underscores the urgent need for action and progress. Sick Cells applauds Representatives Davis and Dunn and Senators Booker and Scott for their leadership and urges Congress to swiftly advance this bipartisan legislation so that every person living with SCD has access to the care they deserve.
https://www.congress.gov/bill/119th-congress/house-bill/5178?s=1&r=1