Our Caregiver Resource page has information and resources to help and support caregivers in the SCD community. Check it out here:

Caregiver Resources

Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our Programs

Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.

Advocacy and Activation

All advocates need timely and accurate information to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.

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ICER
Review

With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.

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Rare Disease
Week

Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.

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Access
and Coverage

Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.

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Sickle Cell Bill
Coalition

When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.

Take Action

Become an Ambassador

You'll learn how to advocate for the sickle cell community on a new level.

Learn More

Ask About our Internships

Throughout the year we take on new interns who gain valuable experience.

Learn More

Share your Story

We're love to hear from members of the sickle cell community - people living with SCD, their family members, caregivers and friends. Share your story to help us show just how diverse this powerful community is.

Share My Story

Donate

Every donation helps us better serve the community.

Donate Online

Request a Speaker

We love to share what we've learned. Let us know how we can partner with you at your events.

Request a Speaker

Stay in the Know

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