Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Gain valuable experience as an apprentice and be part of a team that is shaping the public discourse on sickle cell disease and closing the information gap for this population.
We currently have an available Community Engagement Apprenticeship!
Throughout the year we take on new interns who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every donation helps us better serve the community.
We love to share what we've learned. Let us know how we can partner with you at your events.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
Happy November! With the end of conference season, it’s been fulfilling to see so many familiar faces and connect virtually with the sickle cell disease (SCD) community in meaningful ways. We’re always reminded of how special this community is and the wonderful work that’s being done…
Hello, Autumn! With Sickle Cell Awareness Month coming to an end, that means we’re also saying “so long” to another hot summer. From blood drives to Summits to Project SCoviD, summer ’21 was a busy one for Sick Cells, and we’re gearing up for a packed fall. This month, we’ll share the latest conferences you should have on your radar, show you how we’re celebrating Hispanic Heritage Month and recap some project SCoviD updates.
As we close out a hot August, we’re on the cusp of a very important time for sickle cell disease (SCD) warriors, caregivers and advocates across the nation — Sickle Cell Awareness Month! Every September, voices come together to raise awareness for sickle cell and the needs of the community. While many advocate year round, we are excited to raise our voices and propel positive change all month long.
This month, we’ll share the latest updates from Project SCoviD, highlight today’s Coverage for SCD Summit and conferences to have on your radar. We’ll have some News You Can Use, but first…
Take a look at the sickle cell events happening across the country.
December 10, 2021
11:00 am - 1:00 pm
PhRMA Foundation is hosting a webinar series titled “Advancing Patient-Centered Outcomes and Impacts in Value Assessment” to understand research needs to prioritize patients in comparative clinical and economic assessments.
This workshop is following 2 webinars and has the topic “Looking Forward: Opportunities Towards a Collaborative Research Agenda for Patient-Centered Evidence Generation and Broad Impact Beyond Current Models”
Learn More: HERE
Register: HERE
February 14, 2022
All Day
Globin Research Network for Data and Discovery (GRNDaD) hosts a monthly, virtual sickle cell disease conference for clinical and basic science leaders in SCD.
Learn more and Register: HERE
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
