Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our Programs

Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.

Ambassador Program

Our diverse network of sickle cell ambassadors meet regularly to discuss the community's needs, how to best educate our peers, and how to engage in policy at all levels.

Learn More

Faces of SCD Program

There’s no one face or “look” of SCD, and we’re determined to highlight all of the beauty, challenges and diversity within the community.

Learn More

Advocacy and Activation

All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how we’ve activate the community to take on important challenges within policy and legislation.

home-ICER

ICER
Review

With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.

Learn More
home-rareDisease

Policy Forum
& Virtual Hill Day

Every year, we help educate and prepare sickle cell advocates to speak directly to state reps.

Learn More
home-access

Access
and Coverage

Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.

Learn More
home-coalition

Advocacy
Coalitions

When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.

Learn More
ambassador-program-educating-and-activating

Medicaid Meetings

We help sickle cell advocates prepare to attend Medicaid DURB and P&T meetings to provide public comments and improve access to treatments.

ambassador-program-priority

Research and Surveys

We partner with organizations to conduct research and surveys that help drive our advocacy work.

Take Action

Become an Ambassador

You'll learn how to advocate for the sickle cell community on a new level.

Learn More

Join our Advisory Board

We're looking for leaders that can provide recommendations and advice to our staff.

Learn More

Ask About our Internships

Throughout the year we take on new interns who gain valuable experience.

Learn More

Share your Story

We're love to hear from members of the sickle cell community - people living with SCD, their family members, caregivers and friends. Share your story to help us show just how diverse this powerful community is.

Share My Story

Donate

Every donation helps us better serve the community.

Donate Online

Request a Speaker

We love to share what we've learned. Let us know how we can partner with you at your events.

Request a Speaker

Stay in the Know

Sign up for our newsletter!

Latest Newsletters

We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.

Read More

April Newsletter (2023)

This month, we showcase our new Thrive Over 55 Faces of SCD Campaign, our call to action for the 2023 ICER Review, a Minute with Marqus and many other highlihts.

Read More

March Newsletter (2023)

This month, we are excited to announce the success of the first-ever National SCD Policy Forum, a spring time Minute with Marqus and some news you can use

Read More

February Newsletter (2023)

This month we are reflecting on Marqus maintaining a journal tracking his year-long experience taking Endari in 2018. We’re preparing for Rare Disease Week and our own National SCD Policy Forum and we’re sharing some news you can use.

All Newsletters

Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey

This error message is only visible to WordPress admins
Error: Access Token is not valid or has expired. Feed will not update.
FOLLOW US ON INSTAGRAM

Join our Advisory Board

Interest in Advisory Board

  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through Advisory Boards. We recruit diverse representatives from clinicians, patients, and experts in scientific and health services fields to provide recommendations and advice to our staff. Please complete this form to be notified when the application process reopens for our Advisory Board Application.
  • This field is for validation purposes and should be left unchanged.

Ask About our Internships

  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through our Internship Program. Please complete this form to be notified when the application process reopens for our Internship.
  • This field is for validation purposes and should be left unchanged.

Request a Speaker

Request a Speaker

Thank you for your interest in having Sick Cells participate in your event. Please provide the following information and a member of our staff will contact you shortly.
Name
MM slash DD slash YYYY
What type of a speaker are you looking for?
If applicable, please attach any agenda or event descriptions here
Drop files here or
Max. file size: 300 MB.
    This field is for validation purposes and should be left unchanged.