Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
Learn More
Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns
who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every purchase helps support us as we accomplish our mission.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
On Monday, September 14, we attended a roundtable discussion hosted by the First Lady of the United States to mark Sickle Cell Awareness Month and discuss the challenges that our community continues to face. We learned that this type of meeting happens once in a lifetime and were honored to represent the SCD community while there.
Sick Cells is proud to continue our work with the Assistant Secretary of Health, Admiral Brett Giroir under the Department of Health and Human Services Office of Minority Health. This work is driving change to advance the care and improve the quality of life for people with sickle cell disease. We will attend a historic roundtable discussion with the First Lady of the United States entitled, “Improving the Lives of Americans with Sickle Cell Disease.”
While things are different this year, we’re still happy with our progress. A revamped website, a thriving ambassador program and a successful blood drive all point to our momentum. We keep moving forward. It’s what Marqus would’ve wanted.
Take a look at the sickle cell events happening across the country.
September 1 - 30, 2020
All Day
The CURE SICKLE CELL NOW Move-On Event will be a month-long event throughout September 2020. Howard University invites you to register, and they will mail you a t-shirt that you can wear all month while getting your move-on – walking, running, dancing, anything you like. The month will be full of online activities, including Zumba, kickboxing, yoga classes, and other activities for all ages and abilities. Closing Ceremony on September 30th. Cost is $0-$25. Audience: Everyone!
September 23 - 25, 2020
All Day
Hosted by FSCDR, the 14th Annual SCD Research & Educational Symposium and 43rd National SCD Scientific Meeting is an exciting three-day meeting inviting more than 400 leading researchers, physicians, clinicians, stakeholders, advocates, and social workers with the common goal of finding better treatment, and ultimately, a cure for sickle cell disease. Audience: Medical providers, medical researchers, social workers.
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
