Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Gain valuable experience as an apprentice and be part of a team that is shaping the public discourse on sickle cell disease and closing the information gap for this population.
We currently have an available Community Engagement Apprenticeship!
Throughout the year we take on new interns who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
It’s hard to think that we’ve been living through the COVID-19 pandemic for more than a year. While there have been many developments that have mitigated the threats of the pandemic, it is still greatly impacting our daily lives. As we navigate the new normal, together, we’re excited to introduce a new project that centers around the needs of the sickle cell disease (SCD) community: SCoviD.
This month, we’ll introduce Project SCoviD, reflect on recent speaking opportunities and policy updates.
Happy Spring! Like the trees and flowers in some parts of the country, Sick Cells was in full bloom this month. We’re honored to be able to advocate for the sickle cell disease (SCD) community via a variety of platforms and mediums. From letters to policy forums to virtual lobbying – we’re keeping the momentum going throughout 2021.
This month, we’ll highlight Sick Cells’ first-ever Your Black History Month campaign and our Ambassador Priority Topic Meeting with Liweli CBD. We’ll also discuss our March Policy Forum and share a new blog post and, as always, we’ve selected some News You Can Use!
Take a look at the sickle cell events happening across the country.
May 19, 2021
10:00 am - 4:00 pm
Hosted by Howard University, this virtual event will speak about new treatments for sickle cell disease and host panel discussions on stigma, sexuality, aging, and insurance.
Learn More: HERE
Register: HERE
May 21, 2021
12:00 pm - 1:30 pm
For community based organizations (CBOs), This interactive educational webinar, brought to you by Global Blood Therapeutics Inc. (GBT), aims to inform CBOs on the art and science of fundraising, including an overview of fundraising trends and tips on implementing strategies to increase attractiveness to potential funding sources.
Learn More: HERE
Register: HERE
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
