Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns
who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every purchase helps support us as we accomplish our mission.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
This month, we’ll discuss our upcoming Your Black History Month campaign, the March 2021 Policy Forum, the Sick Cells + Avalere Roadmap, some recent blogs to catch up on and some News You Can Use!
On the final day of 2020 — a year like no other — we’re reflecting on some of the important lessons we learned over the last 12 months.
While the year is coming to a close, there’s no slowing down in sight. This month, we’ll discuss the #FundSickleCell Movement, share updates on this year’s Giving Tuesday and introduce our new Program Manager.
Take a look at the sickle cell events happening across the country.
March 12 - 14, 2021
All Day
Hosted by The Sickle Cell Association of Texas Marc Thomas Foundation, Camp Next Level is a three-night, four-day intense transitional program for teens ages 15-19 with sickle cell disease. This event seeks to address the host of issues and concerns that come from underprepared transitions from pediatric to adult services.
This event will be fully virtual this year.
Learn more: HERE
Register: HERE
March 23, 2021
11:00 am - 1:30 pm
Global Genes and the EveryLife Foundation have partnered to host RARE on the Road events around the country, developing the next generation of advocacy leaders.
With feedback from the community, RARE on the Road 2021 will include one interactive webinar and three in-person meetings. While all parts of this event are geared toward empowering advocates to build their skill set, enhance their knowledge, engage in advocacy, and network with their local rare disease community, in-person events will focus on state-specific information based on their location.
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
