Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
Learn More
Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns
who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every purchase helps support us as we accomplish our mission.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
Happy Spring! Like the trees and flowers in some parts of the country, Sick Cells was in full bloom this month. We’re honored to be able to advocate for the sickle cell disease (SCD) community via a variety of platforms and mediums. From letters to policy forums to virtual lobbying – we’re keeping the momentum going throughout 2021.
This month, we’ll highlight Sick Cells’ first-ever Your Black History Month campaign and our Ambassador Priority Topic Meeting with Liweli CBD. We’ll also discuss our March Policy Forum and share a new blog post and, as always, we’ve selected some News You Can Use!
This month, we’ll discuss our upcoming Your Black History Month campaign, the March 2021 Policy Forum, the Sick Cells + Avalere Roadmap, some recent blogs to catch up on and some News You Can Use!
Take a look at the sickle cell events happening across the country.
April 20 - 21, 2021
All Day
Sickle Cell Disease Association of America, Inc. (SCDAA) 2021 Annual Advocacy Day event is an opportunity for patients and caregivers affected by sickle cell disease to learn how to advocate for issues that are important to them. Participants will learn about the key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better healthcare access, and increased education and awareness for the sickle cell community throughout the country.
Learn More: HERE
Register for Day 1: HERE
Register for Day 2: HERE
April 21, 2021
2:00 pm - 3:00 pm
Brought to you by National Organization for Rare Disorders (NORD), this webinar looks to explain the process of transitioning from pediatric to adult care for people with rare diseases.
This webinar is intended for patients, caregivers, medical professionals, students and the general public.
Register: HERE
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
