Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns who gain valuable experience.
We're love to hear from members of the sickle cell community - people living with SCD, their family members, caregivers and friends. Share your story to help us show just how diverse this powerful community is.
Every donation helps us better serve the community.
We love to share what we've learned. Let us know how we can partner with you at your events.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
Hello, 2022! As we close out the year, we took time to reflect on yet another year of progression within the sickle cell disease community. The year was also met with more uncertainty amid the pandemic and challenges. Nevertheless, we continued to move forward. We listened, learned, grew and took steps to continue building a better future for those living with sickle cell, and the wider rare disease community.
This month, we are presenting our favorite milestones from 2021. While there were plenty more than five moments—and they’re listed in no particular order—team Sick Cells thought these were worth highlighting. We’ll have some News You Can Use…but first, a special Minute With Marqus featuring our Co-Founder and President, Ashley Valentine.
Happy Giving Tuesday! It’s incredible to believe we’re almost through another year. We’re so grateful for all of our supporters from advocates to sponsors to monthly donors — our mission couldn’t be fulfilled with you!
Happy November! With the end of conference season, it’s been fulfilling to see so many familiar faces and connect virtually with the sickle cell disease (SCD) community in meaningful ways. We’re always reminded of how special this community is and the wonderful work that’s being done…
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
