Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Gain valuable experience as an apprentice and be part of a team that is shaping the public discourse on sickle cell disease and closing the information gap for this population.
We currently have an available Community Engagement Apprenticeship!
Throughout the year we take on new interns who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every donation helps us better serve the community.
We love to share what we've learned. Let us know how we can partner with you at your events.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
This month, we’ll honor Marqus’s legacy, share exciting grant announcements and policy updates. We’ll have some News You Can Use, but first…A special Minute With Marqus.
Last month, we introduced Project SCoviD — a collaborative Instagram and Facebook account that shares important information on COVID-19 and COVID-19 vaccines as they relate to sickle cell disease. This month, we’re excited to share it is live! Follow us at @project_scovid on Instagram and Facebook, and share it with your family and friends.
In this newsletter, we’ll honor nurses, highlight recent partnerships and share important policy updates.
It’s hard to think that we’ve been living through the COVID-19 pandemic for more than a year. While there have been many developments that have mitigated the threats of the pandemic, it is still greatly impacting our daily lives. As we navigate the new normal, together, we’re excited to introduce a new project that centers around the needs of the sickle cell disease (SCD) community: SCoviD.
This month, we’ll introduce Project SCoviD, reflect on recent speaking opportunities and policy updates.
Take a look at the sickle cell events happening across the country.
August 31, 2021
12:00 pm - 4:00 pm
Hosted by Sick Cells, the Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care. We will share ideas on the latest strategies to measure value, improve patient outcomes, and better navigate healthcare costs.
September 16 - 18, 2021
All Day
Cayenne Wellness Center and Axis Advocacy’s Annual Sickle Cell Disease Educational Seminar is a three-day seminar designed to address the multi-factorial aspects of sickle cell disease and sickle cell trait awareness and education. The 13th Annual Virtual Sickle Cell Disease Educational Seminar is designed for nurses, health care professionals, providers, educators, social workers, students, individuals with sickle cell disease and their families and the community at large.
The purpose of this educational activity is to strengthen the participant’s knowledge base about SCD and SCT through lecture, discussion and sharing of current and future treatment regimens. In addition to presentations on the pathophysiology, complications, management, and treatment of sickle cell disease, the seminar will present the latest scientific and clinical information related to the disease. CME Credits available.
Learn More: HERE
Register: HERE
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
