Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns
who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every purchase helps support us as we accomplish our mission.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
It’s hard to believe that after this weekend, we’ll only have two months left in 2020. While this year has been one of unprecedented challenges, it’s also presented new opportunities for the sickle cell disease (SCD) community. In these final 60 days, we’re focusing on finishing strong and hope you can find the motivation to do so, as well.
A Sickle Cell Awareness Month to Remember! Team Sick Cells did a lot of planning for National Sickle Cell Awareness Month. We prepared content, social media posts and Instagram Lives with a goal to, as always, spread as much helpful information as possible on sickle cell disease (SCD)….
On Monday, September 14, we attended a roundtable discussion hosted by the First Lady of the United States to mark Sickle Cell Awareness Month and discuss the challenges that our community continues to face. We learned that this type of meeting happens once in a lifetime and were honored to represent the SCD community while there.
Take a look at the sickle cell events happening across the country.
February 16 - 19, 2021
All Day
Hosted by the American Society of Hematology (ASH), the ASH SCD Centers Workshop is a 4-day workshop developed to train health care professionals to establish a clinical center focused on the needs of adults living with SCD. The workshop will walk participants through the common components of such centers, the process for developing a business plan and advocating to stakeholders, the ins and outs of operations, and approaches to measuring impact and improve on the quality of care provided in these centers.
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
