Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Throughout the year we take on new interns
who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every purchase helps support us as we accomplish our mission.
Every donation helps us better serve the community.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
A Sickle Cell Awareness Month to Remember! Team Sick Cells did a lot of planning for National Sickle Cell Awareness Month. We prepared content, social media posts and Instagram Lives with a goal to, as always, spread as much helpful information as possible on sickle cell disease (SCD)….
On Monday, September 14, we attended a roundtable discussion hosted by the First Lady of the United States to mark Sickle Cell Awareness Month and discuss the challenges that our community continues to face. We learned that this type of meeting happens once in a lifetime and were honored to represent the SCD community while there.
Sick Cells is proud to continue our work with the Assistant Secretary of Health, Admiral Brett Giroir under the Department of Health and Human Services Office of Minority Health. This work is driving change to advance the care and improve the quality of life for people with sickle cell disease. We will attend a historic roundtable discussion with the First Lady of the United States entitled, “Improving the Lives of Americans with Sickle Cell Disease.”
Take a look at the sickle cell events happening across the country.
October 28 - 29, 2020
All Day
Hosted by Biotechnology Innovation Organization (BIO), the BIO Patient & Health Advocacy Digital Summit is a 2-day virtual conference that will bring together patient advocacy organizations, academia, regulators, biotechnology industry, and other stakeholders for two days of robust programming to discuss timely policy issues and share best practices.
November 3, 2020
2:00 pm - 6:00 pm
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
