Now is the time to request funding for sickle cell! Join the movement #FundSickleCell

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Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our mission is to elevate the voices of the sickle cell community

and their stories of resilience — to ultimately influence
decision-makers and propel positive change.

Our Programs

Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.

Advocacy and Activation

All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.

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ICER
Review

With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.

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Rare Disease
Week

Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.

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Access
and Coverage

Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.

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Sickle Cell Bill
Coalition

When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.

Take Action

Become an Ambassador

You'll learn how to advocate for the sickle cell community on a new level.

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Ask About our Internships

Throughout the year we take on new interns
who gain valuable experience.

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Join our Advisory Board

We're looking for leaders that can provide recommendations and advice to our staff.

Learn More

Attend an Event

We travel all over the US to organize
memorable events - catch our next one.

Upcoming Events

Purchase Shirts

Every purchase helps support us as we accomplish our mission.

Purchase Here

Donate

Every donation helps us better serve the community.

Donate Online

Stay in the Know

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  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through our Internship Program. Please complete this form to be notified when the application process reopens for our Internship.
  • This field is for validation purposes and should be left unchanged.
  • One of the ways Sick Cells seeks to bring voices from across the community into our work is through Advisory Boards. We recruit diverse representatives from clinicians, patients, and experts in scientific and health services fields to provide recommendations and advice to our staff. Please complete this form to be notified when the application process reopens for our Advisory Board Application.
  • This field is for validation purposes and should be left unchanged.