Become an Ambassador
You'll learn how to advocate for the sickle cell community on a new level.
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Sick Cells is dedicated to developing programs that educate, inspire and mobilize
individuals to create community and policy-level change.
All advocates need timely and accurate information, to feel empowered to make a difference. Take a look at how
we’ve activated the community to take on important challenges within policy and legislation.
With new SCD drugs on the market, Sick Cells worked to spotlight the community’s perspective and needs - and voice them to key stakeholders.
Every year, we help sickle cell advocates lobby at Rare Disease Week (in DC) and speak directly to state reps.
Access to treatments and insurance coverage can vary patient to patient. We work to bring awareness to disparities and ill-informed practices.
When there’s an active sickle cell bill, we collaborate with other SCD groups to form a coalition and unite as one.
You'll learn how to advocate for the sickle cell community on a new level.
Gain valuable experience as an apprentice and be part of a team that is shaping the public discourse on sickle cell disease and closing the information gap for this population.
We currently have an available Community Engagement Apprenticeship!
Throughout the year we take on new interns who gain valuable experience.
We're looking for leaders that can provide recommendations and advice to our staff.
We travel all over the US to organize
memorable events - catch our next one.
Every donation helps us better serve the community.
We love to share what we've learned. Let us know how we can partner with you at your events.
We do our best to round up the latest in treatment and policy news and spotlight SCD warriors in our monthly newsletters. Read through our latest newsletters.
As we close out a hot August, we’re on the cusp of a very important time for sickle cell disease (SCD) warriors, caregivers and advocates across the nation — Sickle Cell Awareness Month! Every September, voices come together to raise awareness for sickle cell and the needs of the community. While many advocate year round, we are excited to raise our voices and propel positive change all month long.
This month, we’ll share the latest updates from Project SCoviD, highlight today’s Coverage for SCD Summit and conferences to have on your radar. We’ll have some News You Can Use, but first…
We cannot let July end without wishing a very Happy Heavenly Birthday to our winged warrior and co-founder, Marqus. To honor Marqus’s legacy, Sick Cells hosted its second annual Celebration of Life Blood Drive. Read more about the event here!
This month, we’ll discuss our quickly approaching Coverage for SCD Summit and the latest updates from Project SCoviD. We’ll have some News You Can Use, but first…
This month, we’ll honor Marqus’s legacy, share exciting grant announcements and policy updates. We’ll have some News You Can Use, but first…A special Minute With Marqus.
Take a look at the sickle cell events happening across the country.
September 21, 2021
11:00 am - 1:00 pm
Georgia Bio’s 2nd Annual Patient Advocacy Summit will bring together the patient advocacy community, industry, and legislators to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do and to help identify policy issues for the 2022 Legislative Session.
Learn More: HERE
Register: HERE
September 22 - 24, 2021
All Day
This year’s American Society of Gene + Cell Therapy (ASGCT) Policy Summit will offer a variety of stakeholder perspectives on hot topics in the gene therapy field and how they inform regulatory, legislative, and payment policies for diagnosis and treatment. This event includes both in-person and virtual registration. Register by September 16 to attend in-person
More Info: HERE
Register: HERE
Elevating the voices of the sickle cell community. #sickcells #facesofscd #scdsurvey
