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Sickle Cell News

 Information about sickle cell disease (SCD) is constantly changing and updating as more research is done and more people are educated. This page will provide the latest information and track recent developments in policy, treatments, events, and more.

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Proclamation on National Sickle Cell Disease Awareness Month, 2020

The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.

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The First Lady’s Improving the Lives of Americans Living with Sickle Cell Disease Roundtable

First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.

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The 4th Black Health Matters Summit: Proactive Black Health in the Age of COVID-19

Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.

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Potential Oral DMT Showing Safety and Signs of Efficacy in Phase 1 Trial

FT-4202 — an investigational treatment for sickle cell disease (SCD) — has a favorable safety profile and the expected biological effects, providing preliminary support of efficacy, according to data from an ongoing Phase 1 clinical trial.

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First Person Treated for Sickle Cell Disease with CRISPR Is Doing Well

A Mississippi woman is doing well one year after undergoing an experimental treatment for sickle cell disease.

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N. Carolina 7-year-old ‘makes lemons of COVID-19 into lemonade,’ biking through city to raise money

TJ Wilson has sickle cell disease. He was supposed to go to Disney World with Make-A-Wish, but when it got canceled, he chose to do something special.

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Sickle Cell Community loses prominent advocate

Dr. Bertram Lubin, fervent sickle cell advocate and former President of Children’s Hospital Oakland passed away in June.

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University of Rochester Medical Center awards grant to fund sickle cell research and treatment

URMC was awarded part of a grant in Access to Excellent Care for Sickle Cell Patients (ACCESS) from Global Blood Therapeutics to fund transitional care from pediatric to adult sickle cell patients and community outreach.

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Rx Reminder: Helping People with Sickle Cell Disease Take Their Meds

New InCharge Health app is in development and could prove to be an effective tool for young SCD warriors to keep track of their medications.

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