Proclamation on National Sickle Cell Disease Awareness Month, 2020
The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.
The White House released a proclamation recognizing September as National Sickle Cell Awareness Month.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
Black Health Matters to collaborate with When We All Vote (co-launched by Michelle Obama) to address sickle cell, among other disease, through virtual fundraiser.
FT-4202 — an investigational treatment for sickle cell disease (SCD) — has a favorable safety profile and the expected biological effects, providing preliminary support of efficacy, according to data from an ongoing Phase 1 clinical trial.
A Mississippi woman is doing well one year after undergoing an experimental treatment for sickle cell disease.
TJ Wilson has sickle cell disease. He was supposed to go to Disney World with Make-A-Wish, but when it got canceled, he chose to do something special.
Dr. Bertram Lubin, fervent sickle cell advocate and former President of Children’s Hospital Oakland passed away in June.
URMC was awarded part of a grant in Access to Excellent Care for Sickle Cell Patients (ACCESS) from Global Blood Therapeutics to fund transitional care from pediatric to adult sickle cell patients and community outreach.
New InCharge Health app is in development and could prove to be an effective tool for young SCD warriors to keep track of their medications.