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Sickle Cell News
Information about sickle cell disease (SCD) is constantly changing and updating as more research is done and more people are educated. This page will provide the latest information and track recent developments in policy, treatments, events, and more.
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable titled “Improving the Lives of Americans Living with Sickle Cell Disease” on Monday September 14, 2020. The participants included U.S. Public Health Service officials, sickle cell patients, and sickle cell advocates including our own Sick Cells’ President and CEO, Ashley Valentine.
FT-4202 — an investigational treatment for sickle cell disease (SCD) — has a favorable safety profile and the expected biological effects, providing preliminary support of efficacy, according to data from an ongoing Phase 1 clinical trial.
URMC was awarded part of a grant in Access to Excellent Care for Sickle Cell Patients (ACCESS) from Global Blood Therapeutics to fund transitional care from pediatric to adult sickle cell patients and community outreach.