March Newsletter (2024)
This month we share results from our Policy Forum and participation in the STAT Breakthrough Summit.
This month we are reflecting on Marqus maintaining a journal tracking his year-long experience taking Endari in 2018. We’re preparing for Rare Disease Week and our own National SCD Policy Forum and we’re sharing some news you can use.
We are wishing everyone a healthy, peaceful and prosperous New Year. Thank you for all of the continued support and love. Read on for a minute with Marqus and some exciting highlights from this year.
This month, we’re reflecting on a special Thanksgiving message from Marqus from 2013, some exciting events, and some news you can use.
This month, we have our Minute With Marqus, a fun event, and a trip to the Hill.
As we close out Sickle Cell Awareness Month and Pain Awareness Month, check out a minute with Marqus, information about an exciting fundraiser, a trip to the Hill and more!
September is National Sickle Cell Awareness Month. All month long, our community of individuals living with sickle cell disease, their caregivers, advocates, healthcare providers, and others come together to bring awareness to the disease.
This month we celebrate our co-founder, Marqus, with our Celebration of Life Blood Drive, announce our Coverage for SCD Summit, and more!
This month we celebrated our 3rd annual Remembrance Week, announced an award, shared some new content, and more!
Each May, we honor nurses and the invaluable role they play in our lives during National Nurses Week (May 6-May 12). This month, we revisit a message from Marqus to nurses…
This month, read on to catch a Minute with Marqus (and Chewy!), this month’s highlights, and some links we think you’ll like.
We’ve always been a believer in strength in numbers. Our mission cannot be fulfilled alone. It takes a community coming together to make positive change. We’re forever grateful for Marqus’s wisdom. Read about this month’s highlights and some news you can use!