Sick Cells and Avalere Health want to thank our Dialogue attendees for sharing so many interesting ideas which helped us create a Roadmap on how to advance care for individuals with SCD.

Read the Roadmap

NORD Webinar: Transitioning to Adult Care

Home / Events / NORD Webinar: Transitioning to Adult Care

As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models whereby they take ownership of their care. This change can seem daunting for patients and parents, especially when dealing with rare disorders that involve multiple specialists that may be part of a care team. 

Join NORD and their panel of speakers to learn how to plan for this change and to hear from a mother and son, who will share their experiences transitioning from pediatric to adult care as a family living with Congenital Bilateral Perisylvian Syndrome (CBPS).

This webinar is intended for patients, caregivers, medical professionals, students and the general public.

Register: HERE

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April 21, 2021
2:00 pm - 3:00 pm

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