Registration is now open for the 2025 SCD Policy Forum!

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2024 Living Rare, Living Stronger® NORD® Patient and Family Forum

Home / Events / 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum

The 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum is an opportunity for people living with rare diseases and their families to come together to gain practical knowledge on how to manage their health and live their best rare lives. Program topics often include sessions about how to advocate for yourself in the healthcare system, how to coordinate your medical care team, and how get involved in rare disease research and advocacy.

Attend in-person in Los Angeles, California or virtually.

Learn More and Register: HERE

 

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Date/Time
June 07, 2024 - June 08, 2024
All Day


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