2023 Rare Disease Week on Capitol Hill

Hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), the multi-day event brings together rare disease advocates from across the country to make their voices heard by their Members of Congress.

Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress. No matter one’s connection to rare disease or their advocacy experience level, all are welcome. Registration closes February 17, 2023

Learn More and Register: HERE