
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
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Our three organizations are working hard to host the most comprehensive advocacy event for SCD to date. The goal of this event is to bring together SCD advocates from across the country to:
Together, we are creating various materials in order to assist in the preparedness and efficiency of all attendees:
1) Mail-out Materials. The hosts will mail attendees an event packet containing the following hand-outs for the event: Branded Agenda, Presenter Bios, Federal Priorities One-Pager, and advocacy toolkits.
2) Virtual Hill Day Platform. The event features a web-based platform for advocates to use during their Virtual Hill Day appointments. Advocates can access their schedules online, receive notifications and reminders, and connect with ease to the virtual meeting room.
Before the meetings, advocates can customize talking points to refer to during meetings, read legislator bios and information, and upload one-pagers or materials to be shared with congressional staff.
3) Office Hours. In order to ensure that all advocates feel comfortable ahead of the Virtual Hill Day, all three organizations will host office hours outside of normal business hours. Office hours will be available on weekday evenings and weekends for two weeks before the event. Advocates will have the option to sign up for the office hours that work best for them. This time will be used to answer questions and walk through talking points for the virtual meetings.
3) SCD Federal Priorities One-pager. This important toolkit will highlight the most important talking points advocates can bring to their legislators. It also functions as a leave-behind resource for the Hill staffers and legislators.
We created the following resources to make sure all advocates feel prepared and have the tools they need to succeed in their legislative meetings.
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This event is sponsored by the following organizations. Thank you for supporting our work.
Want to become a sponsor? Please complete the form below