Our Advocacy Toolkits include detailed steps, guidance and resources for individuals to develop and implement an advocacy strategy. Toolkits can be applicable for all levels of advocacy. Our aim is to provide readers with ideas for creating their own SCD advocacy initiatives.
Use our interactive map to find advocacy resources to help your state and local advocacy efforts.
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Sick Cells has added state-specific legislation to our map. You can find them by selecting your state or by selecting “Legislation” or a “Theme” in the resources tab.
Alabama has approx 2851 residents with SCD (source)
Alaska has approx 45 residents with SCD (source)
Arizona has approx 635 residents with SCD (source)
Arkansas has approx 1266 residents with SCD (source)
California has an average of 4,707 residents with SCD (source)
Colorado has approx 371 residents with SCD (source)
Connecticut has approx 1252 residents with SCD (source)
Delaware has approx 561 residents with SCD (source)
The District of Columbia (DC) has approx 1413 residents with SCD (source)
Florida has approx 8803 residents with SCD (source)
Georgia has approx 5797 residents with SCD (source)
Hawaii has approx 82 residents with SCD (source)
Idaho has approx 36 residents with SCD (source)
Illinois has approx 3720 residents with SCD. (source)
Indiana has approx 1162 residents with SCD. (source)
Iowa has approx 254 residents with SCD. (source)
Kansas has approx 417 residents with SCD. (source)
Kentucky has approx 745 residents with SCD. (source)
Louisiana has approx 3936 residents with SCD. (source)
Maine has approx 75 residents with SCD. (source)
Maryland has approx 4860 residents with SCD. (source)
Massachusetts has approx 1957 residents with SCD. (source)
Michigan has approx 3322 residents with SCD. (source)
Minnesota has approx 570 residents with SCD. (source)
Mississippi has approx 3092 residents with SCD. (source)
Missouri has approx 1903 residents with SCD. (source)
Montana has approx 14 residents with SCD. (source)
Nebraska has approx 148 residents with SCD. (source)
Nevada has approx 539 residents with SCD. (source)
New Hampshire has approx 33 residents with SCD. (source)
New Jersey has approx 4256 residents with SCD. (source)
New Mexico has approx 163 residents with SCD. (source)
New York has approx 8661 residents with SCD. (source)
North Carolina has approx 3973 residents with SCD. (source)
North Dakota has approx 143 residents with SCD. (source)
Ohio has approx 3725 residents with SCD. (source)
Oklahoma has approx 753 residents with SCD. (source)
Oregon has approx 180 residents with SCD. (source)
Pennsylvania has approx 3743 residents with SCD. (source)
Rhode Island has approx 184 residents with SCD. (source)
South Carolina has approx 3694 residents with SCD. (source)
South Dakota has approx 19 residents with SCD. (source)
Tennessee has approx 2077 residents with SCD. (source)
Texas has approx 7132 residents with SCD. (source)
Utah has approx 82 residents with SCD. (source)
Vermont has approx 11 residents with SCD. (source)
Virginia has approx 2961 residents with SCD. (source)
Washington has approx 370 residents with SCD. (source)
West Virginia has approx 200 residents with SCD. (source)
Wisconsin has approx 1146 residents with SCD. (source)
Wyoming has approx 16 residents with SCD. (source)
§ 26:2J-4.36 (2013, New Jersey, Passed)
Establishes legislation requiring Health Maintenance Organizations to provide health care services for Sickle Cell patients.
§ 17B:27A-19.22 (2013, New Jersey, Passed)
Establishes coverage mandates for “small employer health benefits plan” providing insurance coverage for those with SCD.
§ 17B:26-2.1ee (2013, New Jersey, Passed)
Establishes coverage mandates for “individual health insurance policies” providing insurance coverage for those with SCD.
Section § 24-3-1 (2006, New Mexico, Passed)
Establishes sickle cell education programs and regulations for the diagnosis of the sickle cell disease
Ttle § 825 (2002, Alabama, Passed)
Sets criteria for sickle cell centers and sickle cell chapters that receive state support through various funding committees.
§ 22-10B (2016, Alabama, Passed)
Continues the Alabama Sickle Cell Oversight and Regulatory Commission. Commission has existed since at least 1998.
H1188 (2022, Maryland, Passed)
Renames the Statewide Steering Committee, establishes an education program and resources for SCD through the Maryland Department of Health
§ 18-501 (2015, Maryland, Passed)
Establishes a Sickle Cell Disease prevention program, including a Statewide Steering Committee on Services for Adults with Sickle Cell Disease, SCD testing, and other programs listed.
§ 41-24-1 (2015, Mississippi, Passed)
Establishes a testing program for sickle cell disease and showcases different educational materials regarding sickle cell disease. Original bill from 1942. Updated in 1972 and 1983. Also establishes awareness & education program.
RS 47 §305.53 (2013, Louisiana, Passed)
Details tax exemption and exclusion status for Sickle Cell organizations.
RS 17 §1816 (2012, Louisiana, Passed)
Establishes and operates a sickle cell anemia research center at Southern University and Agricultural and Mechanical College at Baton Rouge.
RS 40 §1081.1 (2015, Louisiana, Passed)
Establishes programs to combat infant death and suffering from SCD, and to prevent central nervous damage in children with phenylketonuria, congenital hypothyroidism, biotinidase deficiency, galactosemia and genetic conditions through the Department of Public Health.
