Sickle Cell Disease Caucus

About the SCD Caucus

The Sickle Cell Disease (SCD) Caucus is a bipartisan platform dedicated to advancing policies that improve the lives of individuals and families affected by sickle cell disease. The Caucus works to elevate awareness of SCD, support research and innovation, strengthen access to high quality care, and build support for legislation and federal funding that addresses the needs of the sickle cell community.

Through collaboration with warriors, caregivers, clinicians, researchers, and advocates, the Caucus helps ensure that federal policy discussions reflect the realities of those most impacted by SCD.

SCD Caucus Congressional Leads

Learn more about the SCD Caucus congressional leads by clicking the images or links below.

Frequently Asked Questions (FAQs)

What is a caucus?

A caucus is a group of members of Congress who come together around a shared issue or policy priority. Congressional caucuses provide a forum for legislators to learn about an issue, collaborate with colleagues across party lines, and engage with stakeholders working in the field.

While caucuses are not formal legislative bodies, they play an important role in educating policymakers, shaping legislative priorities, and advancing solutions to complex national challenges.

Why is the SCD Caucus important?

The SCD Caucus helps elevate SCD as a national health priority by fostering bipartisan leadership and sustained congressional engagement. Through the Caucus, members of Congress can:

• Increase awareness of the challenges faced by individuals living with SCD
• Support policies that improve access to care, treatment, and emerging therapies
• Advance federal research and public health investments
• Engage directly with warriors, caregivers, clinicians, and advocates

By bringing together leaders from both parties, the Caucus helps build the bipartisan support needed to advance meaningful policy change for the sickle cell community.