In 2023, Sick Cells conducted our Community Health Equity Research and Promotion (CHERP) Initiative. This project focused on critical themes such as lived experience, access to care, cultural barriers, patient-provider relationships, stigma, and mental health. Our journey involved engaging with diverse subpopulations within the sickle cell community, including the Aging, Hispanic/Latinx, Incarcerated/Formerly Incarcerated, and LGBTQIA+ communities. This report provides a comprehensive overview of the strategies employed in outreach, emphasizing the importance of clear communication, establishing a single point of contact, and respecting the unique circumstances of potential participants.
Our final report highlights the steps taken and results from our listening sessions. Click the image or link below to view the project summary.