Newsletters

You know around the time of year. We pay attention to the atmosphere we’re putting him in and locations because some of that takes a toll on them…

Sick Cells traveled to New York City on September 15. We collected 25 interviews all while keeping our summer tans!

Hip hip hooray! After a year in the making, Marqus had his total hip replacement on August 6. He shares his experience with the healing process…

This month we’ll recap our 2nd Annual Wiggin’ Out event. We’ll also give you an update on policy, Walks and Talks you can attend and a spotlight interview.

Happy summer! It’s our favorite season at Sick Cells because it’s when our team goes out to meet new and familiar faces.

The Faces of SCD storytelling program is an initiative to address stigma and other challenges faced by the SCD community – by giving a larger platform to patients, families, and caregivers.

Every summer, sickle cell organizations across the country host walk/run/jog/bike fundraisers that help support their efforts in the community. Sick Cells attends the events to collect stories from the community.

Marqus shares how his service dog impacts his life. He recounts an event when the dog sensed a severe sickle cell crisis and came to Marqus’ aid.

Kevin Wake is a sickle cell warrior and advocate from Kansas City, MO. He volunteers for the Uriel E. Owens Sickle Cell Disease Association of the Midwest…

February’s a short month – but for Sick Cells it was full of love, history, and rare disease advocates…

In 2014, Marqus sat on an FDA panel to discuss sickle cell, its complications, and the need for available therapies to treat the disease. Four years later and Marqus is excited to fill his very first prescription of Endari.

On December 26th, KHN released the article entitled “Sickle Cell Patients, Families And Doctors Face A Fight For Everything.”  I was so happy that someone heard us.