Why I Advocate: I like to give back to the children and youth, to ensure they have a good opportunity, to make sure they have the best quality care, and the best education about sickle cell, and transition.
Why I Advocate: This illness is not me. It may be a part of my story, but it will never be strong enough to define me. Bringing awareness to sickle cell is so important to me because many Hispanics (Afro-Latino) like my parents don’t realize they carry the trait. I want to help educate the Latin community on this disease and bring some sort of hope to the younger sickle cell warriors that are in similar situations.
Why I Advocate: To give information on Sickle Cell Disease and share knowledge to obtain and give support.
I advocate for sickle cell because it’s time to bring a voice to the voiceless. Many warriors do not have supportive families to help them fight this disease. Therefore, it’s vital that there are other support structures in place so warriors don’t fall through the cracks.
Why I Advocate: Advocacy is more than support, It’s a lifestyle radiating change!
I advocate for every warrior, present & future. Until we have our cure, know I can't stop and won't stop advocating.
I advocate for SCD because of my son who was diagnosed at birth with the disease. I also want to help improve the quality of care for sickle cell warriors and break the stigma behind sickle cell.
I advocate for SCD to continue my brother’s legacy. My brother at the age of 23 years old passed away from the disease. My mission is to research and educate others on how to help a person who is born with HB SS. We are warriors who are on a journey to improve the quality of life for anyone who suffers from this disease. I am a Sickle Cell Warrior.
I Advocate because a close friend passed away from complications of SCD. After he passed I wondered, "How do I keep his legacy alive?" His legacy deserves more than an ode to Sickle Cell. It deserves a better understanding of the disease, advocacy for SCD, and the people who live with it daily for their stories deserve to be told.
I advocate for sickle cell because I am a Sickle Cell Warrior! I have lost loved ones from this disease which makes me fight even harder to let the world know about what Sickle Cell truly is. I was born with the disease and I have it, it does not have me! My goal is to MAKE SICKLE CELL POPULAR!!
I advocate for the warriors that feel as if no one cares. Nothing’s worse than being vulnerable, in dire need of medical attention and being shunted aside. I have experienced this in more ways than one, and it motivates me to keep fighting for Sickle Cell patients so we won’t be forgotten within our medical system.
Why I Advocate: I remain optimistic and grateful for life. I work towards my goals and hope to affect real change in the sickle cell community. I am focused on not just living with sickle cell but thriving with it
I advocate to redefine the standard & stereotype of what living with Sickle Cell SS can be. To be a voice of inspiration that SS didn’t happen TO US, it happened FOR US. My life purpose and greatest fulfillment has come in spite of sickle cell and I will fight so that others can receive adequate treatment and lead purpose-led lives they design and not default to.
I advocate for SCD because it's essential to educate the masses about sickle cell disease. It's also important to be an example to other sickle cell warriors. Life should not be defined by sickle cell or any chronic illness. Despite our disability, we ALL have the ABILITY to dare, dance, and dream through the pain.
I advocate for Sickle Cell Disease because it has been neglected for too long--both nationally and globally. Health equity, particularly non-discrimination and equality, is a basic human right and I look forward to playing an active role in pushing SCD to the forefront of the American Public Health agenda.
I advocate as a means to increase sickle cell education and awareness, elevate the voices of the community and improve healthcare outcomes that lead to sustainable increases in quantity and quality of life
I am a parent and caregiver to my son with sickle cell. I advocate for him and for myself because I also have sickle cell.