2024 Coverage for SCD Summit

The Summit

The 2024 Coverage for SCD Summit will be a virtual event on Tuesday, December 10 from 12:00-400 pm ET.

The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD). This meeting brings together payers, providers, pharmaceutical manufacturers, patient groups, researchers, care teams, and policymakers to discuss ways to tackle the complexities of coverage and access to SCD treatments and care.

This year’s event will feature sessions on:

• Innovative Access Models for Sickle Cell Disease: Learn about the CMS Cell and Gene Therapy Access Model and how it aims to expand access to cutting-edge treatments for Sickle Cell Disease (SCD), ensuring equitable care delivery.
• Medicaid Access and Coverage Insights: Hear from healthcare experts and state Medicaid directors about the current landscape of Medicaid coverage for SCD, key challenges, and actionable policy recommendations to improve access and reduce disparities.
• State-Level Strategies for Gene Therapy Adoption: Discover how states are navigating the integration of cell and gene therapies into Medicaid programs, with a focus on overcoming barriers to access and enhancing health outcomes for SCD patients.
• Patient Experiences and Community Engagement: Gain valuable insights from patients who have accessed new therapies for SCD, along with discussions on how community-based organizations (CBOs) are addressing critical healthcare coverage gaps for underserved populations.
• …and more!

— — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — —

Background

Sickle cell disease is a rare genetic disorder, affecting approximately 100,000 individuals in the U.S., and disproportionately affecting Black and Brown populations. Treatment advances are emerging, yet barriers to access contribute to underutilization. Racial inequities and health disparities add to poor health outcomes and gaps in access.

The Coverage for SCD Summit highlights best practices for payer management of sickle cell disease. Information on the complications of sickle cell disease, advances in current treatment options, and strategies to address racial health disparities through coverage policy are shared.

— — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — —

Check back soon for more information and registration!

— — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — — —

Sponsors

Thank you to our Sponsors:

Want to learn more about last year’s summit? You can find our previous agenda, speaker list and more HERE.