Sick Cells interviewed Jackie, an SCD warrior in the healthcare field, on her experience living with sickle cell disease, and her support system or “dream team” that helps her through it.
Sick Cells interviewed Jackie, an SCD warrior in the healthcare field, on her experience living with sickle cell disease, and her support system or “dream team” that helps her through it.
Don’t let it control you. It’s a part of your life, but live with it, get back up, keep it going. Take care of yourself. Find someone that’s going to speak for you. Let them know what you want, what you need. Get it written down if you have to, but just have a great support team.
Oh. Growing up, it was kind of rough. I had a very strong mother and grandmother that believed in home remedies. So from my mother, I married my husband. My husband, now my children, so I call them my dream team.They know me, they speak for me, and they make sure that I’m right, I’m good.
Just educate yourself and listen to that patient, listen to that person when they tell you that they’re in pain. You might not see it or see any signs or whatever, but just educate yourself and try to listen to that patient and go from there.
That I’m real. I’m real, my pain is real. Like I said, listen to us, understand us. And I wish that the doctors and the nurses and the pharmacy, we all work together to make this a better… You know? Educate better about sickle cell.