Meeting with your legislator? Don’t go empty-handed! Sick Cells and SC3 have developed this legislative one-pager to help you advocate!
This guide provides information on the upcoming U.S. Food and Drug Administration (FDA) convening for Cellular, Tissue, and Gene Therapies Advisory Committee to discuss exa-cel and how to submit written and oral comments.
A toolkit to describe the Sickle Cell Disease Care Center Model
The American Society of Hematology has created this Fact Sheet to provide information regarding the Sickle Cell Disease Comprehensive Care Act (H.R. 1672/S. 904). Advocates can use this document to request their legislators cosponsor the bill which was reintroduced in both the house and senate on March 21, 2023.
Meeting with your legislator? Don’t go empty-handed! Sick Cells, SCDAA, and SC3 have developed this legislative one-pager to help you advocate!
Letter writing to support sickle cell disease (SCD) can be applied in so many different ways for effective action and advocacy. This toolkit explains different types of letters and how they are used in various scenarios to help build confidence in your advocacy journey.
Sharing your story with the media is becoming a common opportunity for many SCD Warriors. However, you want to be prepared and ready to adapt. This toolkit will help you think through the best way to break your story.
Facing severe pain that requires immediate treatment is an unfortunate reality for many individuals with sickle cell disease (SCD). This toolkit includes resources and strategies to improve care for SCD warriors in the emergency room (ER).
This toolkit provides resources to assist mentees and mentors in making the most of the mentoring relationship.
Use this worksheet as a guide for preparing your story to share with legislators.
Meeting with your legislator? Don’t go empty-handed! Sick Cells has developed this legislative one-pager to help you advocate!
This toolkit provides tips for virtual meetings with legislators.
